Neck pain and dizziness is a common symptom that can have a significant impact on an individual’s daily life. It can also involve migraines, making it challenging to know where to start in finding relief. It’s important to address the root cause of the pain for long term relief and management. In this blog post, we will explore the connection between neck pain, migraines, and dizziness, and neck pain exercises.
The neck is made up of several small vertebrae, muscles, and ligaments that support the weight of the head. When these structures become injured or strained, it can cause pain that radiates to other areas of the body, including the head. Neck pain can be associated with migraine, either as a prodrome or interictal symptom. This can result in neck pain and dizziness, especially if you have vestibular migraine.
Some report feeling like their headaches start at their neck, or neck massages or stretching will set off a migraine. This lets us know that the neck is involved, and we want to continue with neck treatment BUT we need to be careful how much neck work is done at any given time to avoid setting off a migraine or headache.
Others feel like working on their neck helps improve their headache or relieves in entirely. This is great news and also tells us the neck is involved, but we can approach the neck in a different way, using neck pain exercises, stretches, manual work and other treatment options for symptom relief and long term management.
Neck pain and dizziness are commonly paired together. When dizziness comes on, it’s natural for our body to tense up and try to limit head movements in attempts to reduce dizziness. Sometimes neck pain from an injury or tension adds to your body’s general stress and discomfort, amplifying overall discomfort and dizziness. There are also sensors in our neck that talk to our brain so we know where our head is in space. If these signals aren’t matching up with the other movement sensors in our body, or our brain is having a hard time integrating all this information, we can feel dizzy, bobble head like, spacey, and more.
Neck pain can have many different causes, but some of the most common include:
The symptoms of neck pain can vary depending on the cause of the condition. Some common symptoms include:
The treatment for neck pain and dizziness will depend on the underlying cause of the condition. In some cases, the symptoms may go away on their own with time and rest. In other cases, medical intervention may be necessary. Some common treatments include:
Here are a variety of exercises and stretches that can help alleviate neck pain and improve mobility. Again, this can vary person to person based on the root cause of neck pain. This may assist with neck pain and dizziness, or reducing headache/mgraine frequency and intensity, or a combination of things. Listed below are common exercises used in neck pain treatment. Consult your doctor or physical therapist to make sure you’re cleared to exercise and finding the exercises that are best for you.
Neck pain and dizziness are very common and can come hand in hand. The exercises listed above can help relieve tension in the neck, shoulders, and upper back, which can reduce pain and improve mobility. It is important to consult with a healthcare professional before beginning any exercise program to ensure that the exercises are safe and appropriate for your specific condition. By incorporating these exercises into your daily routine, you can reduce neck pain and improve your overall quality of life
Want to learn more about neck pain, with example progression and exercise plans and other vestibular tools from the experts and be a part of a supportive community to get back to your daily life? Find out more below:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
Here is a beginners guide to vestibular migraine. We’ll cover the difference between migraine, vestibular migraine, management tips and tricks, and when to start vestibular rehabilitation (VRT).
In general, migraine is a neurological disorder and has various symptoms that can be present. Here is a list of some common symptoms associated with migraine:
Migraines act differently with each person. A common misconception is that a migraine is only a bad headache, or if you know someone with migraines and their symptoms are different than what you experience you think “oh well I don’t have migraines because they’re nothing like my friends”. If it’s impacting your life, it’s worth talking to a medical provider about!
Vestibular migraine accounts for 3% of all migraines. This subtype of migraine has specific symptoms relating to the vestibular system (vertigo, imbalance, dizziness, brain fog, feeling “off”, lightheadedness etc).
The International Classification of Headache Disorders criteria for vestibular migraine are:
click here for the research article that outlines this criteria.
The big thing to remember here is that not all vestibular migraines have head pain/headaches. Headache can be present, as well as the other symptoms on the list above in addition to vestibular symptoms.
The 5 phases are:
VRT is beneficial in addressing residual symptoms after migraine attacks, or the interictal symptoms experienced in day to day life. VRT is most effective when attacks are mostly under control. If you’re having multiple attacks in a month, or you’re having a hard time getting symptoms under control, VRT may not be appropriate at that time. A couple of sessions may be helpful for education to try various methods to get symptoms under control, or addressing neck pain through gentle stretching, manual work, postural and ergonomic education).
VRT is most beneficial when your migraine is under control. Using habituation principles to improve interictal symptoms is best done when your vestibular migraine is under control. If your migraine and symptoms aren’t well managed, trying to do VRT is like throwing gasoline on an already raging fire and hoping it burns out. This is why VRT can make you feel worse. It’s important to have a therapist familiar with vestibular disorders and vestibular migraine to guide and dose your VRT appropriately.
If you begin to feel an attack coming on, you want to initiate your plan as soon as possible to try to stop th eattack or minimze the severity or time of symptoms. This may look like:
There’s a lot of great content on tis website for vesitbular migraine, I tried to include most of it here but might have missed some. Vestibular Group Fit is a great place to find all this information presented to you in one spot with excellent resources, with a community of others to provide their own experience, advice and guidance for symptom management, lifestyle changes, and support with movement.
Want to learn more about vestibular migraine management and be a part of a supportive community to get back to your daily life? Find out more at this link: https://tvd.flywheelstaging.com/about-group/
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
Dr. Alexandra Smith is based in Santa Fe, NM (you can find her clinic here) and works to identify, diagnose, treat and prevent various diseases, injuries or defects of the ear. Audiologists are also able to assist their clients with maintaining good hearing and can assist with hearing devices. Dr. Smith perform audiology testing for vestibular disorders and is going over them in more detail to help you better understand your test results and know what to expect. If you think you’d benefit from audiology testing for vestibular disorders, talk to your doctor about comprehensive audiology testing.
This blog post covers some content Dr. Smith covers with Dr. Madison Oak, vestibular physical therapist for our vestibular group fit members. These tests are common when evaluating for vestibular disorders but aren’t always well known or explained. Read below to learn more about audiology tests for vestibular disorders and what they can help tell you about your vestibular condition.
A specialty within audiology which includes:
Using audiology tests for vestibular disorders can be another piece of information to consider with other testing (MRI, physical therapy, occupational therapy, ENT, Neurology etc) to best determine a plan of care to manage your vestibular condition.
What does audiology testing and vestibular disorders have to do with each other? Anatomically, our inner ear has both a spatial awareness system (the vestibular system) AND hearing portions (the cochlea) that make up the inner ear. The nerve that connects our inner ear to the brain also branches from the same nerve to reach both of these sections. It is also common to have other ear symptoms or hearing changes with vestibular conditions, so it’s important to get testing done by a specialist in the hearing portion of our inner ear, an audiologist!
Common audiology tests for vestibular disorders include:
Below, we’ll go into more detail on what these tests measure, what to expect, and how these tests can help with vestibular diagnostics.
You are in control and can stop at anytime, it is NOT AN ATTACK.
YES! Certain vestibular conditions will not show up on this testing. Migraine will not show up on MRI, CT scans, ECOG VEMP or VNG or audiograms. These tests can still be helpful for these conditions that require a diagnosis of exclusion to rule out other conditions that these tests can reveal. Audiology tests for vestibular disorders can help lead us to identify specific diagnoses. If testing comes out normal, audiology tests for vestibular disorders can also help consider other diagnoses that would show normal testing.
Audiology tests for vestibular disorders is one piece of testing to be considered with other providers testing and listening to what you’ve experienced. Listening to your experience and looking at all the test results can help get the right team of providers (OT, PT, Neuro, ENT) in your corner to start your healing journey. It’s natural for this team to change slightly, or change focus for periods of time with certain providers based on your needs. Keep your team in the loop so they can help adjust accordingly, they’re here to help YOU.
Want to learn more about vestibular testing, ear pressure, tinnitus and other vestibular tools to get back to your daily life? Find out more at this link: https://tvd.flywheelstaging.com/about-group/
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
Dr. Sheikh is very knowledgeable and has had extensive training to help address and manage headaches, and more specifically migraines. Dr. Sheikh got her MD and then completed her residency at MOntefiore Medical Center in Bronx NY. She then went on to complete two fellowships; a vascular fellowship and then a fellowship in “Headache and Facial Pain” Harvard Medical school and is now an adjunct professor at Ichan Medical school at Mt Sinai in New York City. Being in a clinic setting for over 6 years now, Dr. Sheikh has been treating and helping her patients manage complex headaches with a holistic approach. She’s very up to date on current medication options and other complementary treatments that she is sharing with us in Vestibular Group Fit!
“I like to think of migraine as a disease, and headache as a symptom…migraine is a genetic neurological disease and headache is a symptom of migraine”. Dr. Sheikh
Migraine is more than just a headache! Migraine may have a headache (not in all cases) but also vertigo and dizziness, light or sound sensitivity, brain fog, or visual auras. Headache associated with migraine is most reported disabling symptom, but others may have dizziness or sound sensitivity as their most prominent symptom. For a more indepth look at vestibular migraine, here’s a helpful article to review, click here.
How do we treat migraine holistically?
Treatment for vestibular migraines is overall similar to other migraine management, however Vestibular Rehab Therapy with a physical therapist can be helpful and neuromodulation devices (cepahly or gammacore for example) can be good options to consider when addressing vestibular migraine!
Contact info for Dr. Huma Sheikh:
Instagram: @headachesnyc
Website: Headachesnyc.com
Dr. Sheikh talks more about family planning, diet, and sleep in the premium content in Vestibular Group Fit. Found out more at this link: https://tvd.flywheelstaging.com/about-group/
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
Our body uses three main systems to know where we are in space and what needs to be done to be balanced and safe. Today’s focus is going to be on our eyes and inner ear working together with visual vestibular integration. Let’s talk about what this is, what happens when visual vestibular integration isn’t working, and what to do about it!
If you need a refresher on our body’s main systems for balance, click here to review our What is Balance article before reading on.
Visual vestibular integration is combining the information from our eyes and inner ear to carry out tasks to help with our balance. These two systems work closely together to help keep our vision steady when moving our body, head, or both at the same time. This is known as the vestibulo-ocular reflex (VOR).
The brain also uses visual and vestibular information to gather as much information about your environment and compares all this information to get as clear a picture as possible. This creates checks and balances to ensure that our brain knows what is going on and can respond correctly.
A good example of this is when you’re sitting in a parked car. The car next to you starts to back up, and you feel like you’re moving briefly. This is your eyes picking up the car backing up next to you and saying “hey we’re moving what are we going to do about it”. You quickly realize that you aren’t moving because your vestibular system kicks in and says “actually we aren’t moving, the eyes are seeing that other car move, we are SAFE”.
If you read the previous article What is Balance, you know there’s the proprioceptive system. We do use our proprioceptive system to compare sensory information with our eyes and inner ear- especially on uneven surfaces and to make sure any body movements are accurate and correct. This relationship is not the main focus of this article but it does exist! We’re focusing on the connection between the inner ear and eyes because of certain symptoms people experience when visual vestibular integration isn’t accurate, so keep reading on to learn more.
If the signal from our vestibular system isn’t sending or perceiving the correct information (BPPV, neuritis, VM etc), our brain starts to ignore what our vestibular system is saying and rely more on our visual system. Using only our eyes can result in busy environments making you feel dizzy or like you are moving when you really aren’t. The vestibular system isn’t being used in these situations to double check the information for our eyes. Things like busy areas like malls or restaurants, action scenes in movies, or first person video games can make your symptoms worse. Luckily, there are ways to work on reducing the reliance on your eyes and start using accurate vestibular information to feel better in busy environments.
Balance exercises that challenge vision help promote your vestibular and proprioceptive systems. With practice and gradual progression of these exercises, our brain starts to relearn how to listen to all 3 senses equally again. Consulting a trained and licensed vestibular therapist can help you safely progress these exercises and is strongly recommended. The goal is to start with sitting or standing balance exercises that make the visual and proprioceptive information hard to gather, so your brain has to rely on vestibular input to complete the exercise! This can be done in a variety of ways,a few ways a trained vestibular PT might accomplish this is:
There are many ways to tailor exercise individually and safely. Consult a professional to evaluate your specific needs and assist you in the safe progression based on your needs!
Want to learn more about visual vestibular integration, and other vestibular tools to get back to your daily life? Found out more at this link: https://tvd.flywheelstaging.com/about-group/
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
In general, Persistent Postural Perceptual Dizziness (3PD or PPPD) is a condition resulting in long term dizziness that fluctuates in severity after an initial event or vestibular condition. Let’s break down the diagnostic criteria to better understand what 3PD and if this is something to seek out treatment for.
Food and diet can impact how we feel, and can play an important factor when it comes to the management of certain vestibular conditions. Your doctor may recommend certain dietary guidelines based on your vestibular condition and other factors (medications, other health conditions etc).
For vestibular migraine, certain foods can provoke your symptoms or trigger a migraine depending on how “full” your migraine threshold is on a given day. (click here to learn more about threshold/bucket theory and some additional information on migraine diets). If you’re not sure where to start with changing your diet, a registered dietitian or nutritionist can be a great resource and guidance in exploring how food can be medicine.
Kelli Yates, RDN, LD, CLT is a private practice registered dietitian and specializes in migraine and gut health. She became interested in this area while pursuing her own answers to help manage her migraine beyond medication. Kelli has self guided programs, 1 on 1 help with her personally, and great information that she shares with us all on her instagram (@the.migraine.dietitian).
Kelli notes how food can be medicine as both a preventative and active treatment. In general, food is best used as a long term preventative. For migraine, this long term management of symptoms with food involves learning what foods provoke symptoms or trigger a migraine and in what quantity. Some foods may need to be avoided altogether and others you may be able to enjoy in moderation, it really depends on the person. An elimination diet can help reduce common food triggers for migraine and then you reintroduce foods to determine if they affect you.
Food can sometimes have an immediate effect. Peppermint and ginger can help with acute nausea and initial symptoms. Food schedules can also have a more immediate change on how you feel. Regular meal times/not skipping meals, or healthy snacks throughout the day can be a small change that could impact how you feel.
If you want to hear more from Kelli, follower her on instagram @the.migraine.dietitian or go to her website https://kelliyatesnutrition.com/
Kelli talks more about reintroducing foods, why low histamine diets are only temporary solutions, probiotics, gut health testing and anxiety around food in her talk with Dr. Madison.
Do you want to learn how to manage your vestibular disorder holistically, through diet and more?
Click here to Manage your Vestibular Disorder Better
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
Vestibular disorders, especially Vestibular Migraine, can cause neck pain and cervicogenic dizziness. However, thankfully, these are both manageable with vestibular physical therapy and cervical (neck) physical therapy. The neck is a complex group of muscles, bones, joints, and other soft tissues that can easily make you feel ‘off’ or out of place.
Luckily, that feeling does not have to last forever. Cervicogenic dizziness and other neck dysfunctions are very treatable. One of my favorite ways to manage cervical issues is stretching. Here are my twoi favorite stretches:
Your pec muscles are located in the front of your chest. You have 2 on each side, the pec major, and the pec minor. The pec major is larger and lays on top of the pec minor. To stretch them both, you need to perform 2 different stretches for best results. In this video we see three stretches.The first two stretch the pec major, and the last stretches the pec minor. The further up the doorway you place your hands, the more you’ll get into the pec minor.
If the back of your neck is bothering you, it can come from your chest, but another great stretch is a trapezius stretch, which will help stretch the back of your neck. The back of your neck is made up of quite a few muscles, but the biggest one, which tends to feel knotty, is the trapezius muscle. Here’s my favorite way to stretch the back of my neck. Watch the video, and if you want a second stretch for a similar movement, don’t twist your head!
Other than stretching, many things can help with neck pain. General exercise, improving your posture, and taking breaks from sitting.
Exercise is good for us. Whether or not we’d like to admit it, we know that it’s something we should participate in regularly. There are a few exceptions, but it’s statistically unlikely that you’re in that group of people. If exercise makes you dizzy, or you’re worried that it could make you dizzy, Vestibular Group Fit is the answer to your issue. Vestibular Group Fit is the all-in-one, holistic solution to strengthening your vestibular system, helping you to move, and more! This helps you get rid of your neck pain through movement, and will help you prevent dizziness attacks in the future!
Your posture is just as important as your mom said it would be. If you ever thought that you may be having dizziness BECAUSE of your neck, your posture could be playing a roll. Your posture is in charge of where your head is – it’s all about your neck. If you neck is giving your brain a ‘bad’ signal about where your head is in space, it gets confused and send a dizziness signal. But, it can be treated with Cervical Physical Therapy and Vestibular Group Fit!
Sitting for too long can be harmful to our posture, and if we remember from above, our posture can make us feel dizzy if it’s poor. In a world where we all work from home, it can be easy to get into the routine of sitting at your desk and not leaving until you finish work, except maybe a trip to the kitchen or two (I am guilty of this myself). Instead, it’s vital to take sitting breaks. Every 45-60 minutes stand up, walk to get a glass of water (yay, hydration!), grab a snack, or just take a lap around the house. It doesn’t matter what you do, but set a timer and make it happen! It will help your neck, back, and vestibular system!
Your vestibular system is a vitally important structure located in your inner ear. It is responsible for balance, equilibrium, spatial awareness, and more. It is connected to the cochlea and depends on fluid, nerves, and ear crystals (otoconia) for function. Vestibular hypofunction is a common dysfunction and means that your vestibular system is functioning ‘less’ than it should be (hypo=less). A unilateral vestibular hypofunction is more common than bilateral, and that’s why you find so much more information on it on Google.
Unilateral vestibular hypofunction means that one of your vestibular systems is working suboptimally. Bilateral vestibular hypofunction means both of your vestibular systems are working suboptimally. In rehabilitating a unilateral dysfunction, the opposite side can be used to help you compensate for the other side. However, with bilateral vestibular dysfunction, both sides have some sort of dysfunction, and cannot be used to compensate, adapt, and/or habituate.
Bilateral vestibular hypofunction can come from many pathologies. Those with vestibular migraine, bilateral Meniere’s disease, history of meningitis, CANVAS, superficial siderosis, and others can cause bilateral vestibular hypofunction. Regardless of the causation, once you have bilateral loss it’s important to understand what it is, how to manage it, and how to take care of the rest of your health.
If the bilateral vestibular hypofunction is a result of another neurological disease, you may also be experiencing alternative symptoms secondary to the diagnosis.
Managing bilateral vestibular hypofunction is about much more than medication, in fact, in the chronic phases of bilateral vestibular hypofunction it’s recommended not to use medication, but o use vestibular rehabilitation therapy and exercise to promote healing (1). In a randomized control trial, those who underwent vestibular rehabilitation treatment had significantly better outcomes in function and balance than those who had no treatment or only used medications. This is likely because the mediations typically prescribed are vestibular suppressants and anti-emetics. Vestibular suppressants will actually hinder your system’s function further, and anti-emetics are only to treat the symptoms so nausea and vomiting associated with vestibular dysfunction.
Managing bilateral vesitbular hypofunction requires strengthening your physical body, improving the use of your proprioception, maintaining eye health, and continuing your general health. You have three balance systems, and one (your vestibular system) is not functioning at 100%, but strengthening the other two (vision and proprioception) will help you maintain the best balance possible. Additionally, taking care of your physical health, preventing other morbidities like diabetes or cardiovascular dysfunction, and staying as fit as you are able will help you keep your balance and equilibrium as much as possible.
With a permanent injury to any system, the body uses another system or external resource (like a cane) to make up for the loss of the damaged system. In a unilateral vestibular hypofunction, the adaptation of the brain and opposite vestibular system returns your equilibrium to a new normal by rewiring brain pathways (through neuroplasticity). With bilateral vestibular hypofunction, since we cannot use the opposite system to adapt and compensate, you may need to employ other tactics.
For bilateral vestibular hypofunction, external compensation tactics are frequently a good idea. I recommend the following:
A lot of attention to yourself and your balance systems. I know that this is true for all vestibular dysfunctions, but especially for Bilateral Vestibular Hypofunction. What questions do you have about BVH I can help you answer? Comment below, or shoot me an email!
Vestibular Group Fit has Premium Content dedicated to understanding Bilateral Vestibular Hypofunction. Strengthening your legs and body is one of the best things you can do to improve function and feel less wobbly with Bilateral Vestibular Hypofunction.
(1) Horak FB, Jones-Rycewicz C, Black FO, Shumway-Cook A. Effects of vestibular rehabilitation on dizziness and imbalance. Otolaryngol Head Neck Surg. 1992;106(2):175-180. PMID:1738550
Mal de Debarquement Syndrome, or MDDS, is the sensation that you are still in passive motion, even when you have stopped the passive motion. Imagine you were on a plane or a boat, and that you step off. You momentarily may have sea legs, you may feel imbalanced or like you are going to lose your balance. Maybe you feel like you’re internally still swaying to the rhythm of the ocean. This is normal, there’s nothing to be concerned about here, this is not Mal de Debarquement Syndrome.
Mal de Debarquement Syndrome is when you chronically feel you’re in chronic passive motion after you disembark from a long trip where passive motion is involved. Typically extended boat, plane, or car rides.
MDDS can be spontaneous, but this is not as common. When you have non-motion-triggered, or spontaneous, MDDS, it typically comes from a stressful event or a large hormonal change. In a study, they found approximately 44% of people had symptoms onset in perimenopause or menopause (1). It’s important to consider your life stage when the diagnosis is being made.
MDDS symptoms are very specific, but they can also mock symptoms of vestibular migraine. Some people with vestibular migraine also feel as though they have MDDS, but that is frequently an incorrect diagnosis. MDDS symptoms are constant feeling of imbalance, rocking or swaying, feeling like you’re walking on an uneven surface. These are similar to vestibular migraine symptoms. BUT, MDDS always gets better when you’re in passive motion. People with MDDS very rarely have motion sensitivity or get car sick. Typically, the best part of their day is when they’re driving, on a boat, train, or plane.
If these symptoms are spontaneous, they can actually be caused by hormonal changes or stress. These symptoms, again, get better with passive motion. This is different than chronic subjective dizziness, which is often confused with MDDS because chronic subjective dizziness gets worse with motion, while MDDS is better when in motion. Be sure to consider this when you believe you may have MDDS.
MDDS can be treated in two ways. The gold standard for MDDS treatment is the Dai Protocol (2). This protocol treats MDDS with optokinetic stripes and passive head motion. In short, the MDDS Treatment discovered by Dai plays stripes in >90% o your vision, and someone moves your head in a right, left, center passive motion at approximately 12 Beats Per Minute. The direction of the stripes is determined by the opposite of the direction you feel you are being pulled, or by where you end up on the Fukada Stepping Test. This is repeated for 1-8 minutes, 1-8 times a day, for 5 days with a 30-minute interval in between. inn 17/24 patients, there was an immediate 75% improvement in symptoms. And, when looking back at the study they found that there may not have been all people with true MDDS – some may have had an inaccurate diagnosis and was likely why they did not see immediate improvement.
Physical Therapy for MDDS Treatment treats only the functional deficits. It can be done before or after the Dai Protocol is attempted. And these functional deficits should be focused on especially if walking, balancing, or gaze stability is difficult for you. Vestibular Rehabilitation Therapy is not done to completely rid you of your MDDS symptoms or rocking and swaying, but instead to improve your ability to function throughout your life, even if you feel you’re rocking and swaying.
The diagnostic criteria for an MDDS Diagnosis are now clear, and stated below (1).
Remember, you must feel BETTER in motion, not worse, to receive a diagnosis. If you are in passive motion and feel worse, you are more likely to have chronic subjective dizziness, PPPD, or another vestibular dysfunction.
MDDS lasts for an indefinite amount of time, especially when untreated. It is considered chronic if the symptoms do not disappear for more than 6 months. For some people, MDDS can last for the rest of their lives, and for others, it disappears as quickly and spontaneously as it appeared, especially if it had a spontaneous onset. If your MDDS symptoms ever do decrease or go away, it’s recommended to avoid the original stimulus that brought it on as much as possible. I know that this is easier said than done, as you may have gotten MDDS by being in a car and you probably still need to drive. In this case, I do recommend driving and going about your activities, do not practice avoidant behaviors, but do try to get out of the car and walk around, taking frequent breaks, if you’re on a longer trip.
This can be tough, but there are a few ways that I know whether it’s VM or MDDS as a clinician. You should always be asking your doctor/healthcare team for their advice, but here are my best tips to help you out.
If you answered yes to questions 1-4, Vestibular Migraine is more likely than MDDS. If questions 5-7 sound more like you, MDDS is more likely. Remember that this is not medical advice, and you should always consult your doctor!
Sources:
(1) Cha, Y., Cui, Y., & Baloh, R. (2018, May 7). Comprehensive Clinical Profile of Mal De Debarquement Syndrome. Retrieved August 29, 2020, from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5950831/
(2) Dai M, Cohen B, Cho C, Shin S, Yakushin SB. Treatment of the Mal de Debarquement Syndrome: A 1-Year Follow-up. Front Neurol. 2017 May 5;8:175. doi: 10.3389/fneur.2017.00175. PMID: 28529496; PMCID: PMC5418223.