Learn about what MDDS is, how it can be treated, and other resources to learn more about MDDS management.
Criteria for the diagnosis of Mal de Débarquement syndrome
MDDS diagnostic criteria has changed slightly to include a spectrum of time someone has been experiencing symptoms. This has been designed to help those get a diagnosis and begin treatment sooner which is a great addition. Here they are:
When searching for answers and finding a diagnosis, it can be tough to know which description fits best. You can also have more than one vestibular condition to make diagnosis more challenging. Dr. Madison talks with Vestibular Group fit Members the differences between Vestibular Migraine, PPPD, and MDDS as well as treatment considerations if you have a combination of diagnoses.
In this blog we’ll briefly talk about some differences between 3PD (persistent postural perceptual disorder) and MDDS
3PD
MDDS
If you’re searching for answers, you might come across non-motion triggered MDDS. This area of vestibular research and classification is still up for debate. Some think this is a different form of chronic dizziness, or vestibular migraine, or something else. Time will tell where this ends up!
A very popular protocol for MDDS treatment is the Dai protocol. A 2018 research study by Dai et al show that 75% of those undergoing treatment had significant improvement when followed for 1 year. This protocol involves a few important tests and equipment to follow and is best to be done with a provider knowledgeable in this protocol. If you’re in a place where a provider isn’t familiar, they can read research and implement the protocol with you.
More information on the Dai protocol can be found here.
A great treatment tool for MDDS or other visual vertigo can be found here through 360 Neuro Health. Talk to your provider before using to find the best dosage and progressions.
There are more treatment considerations than the Dai protocol. Medications such as SNRIs/SSRIs and benzodiazepines have been shown to be a beneficial part of treatment for some.
Other factors to consider as part of treatment include:
Dr. Shin Beh goes into detail on MDDS and treatment in his book Disembark, check it out here as well as other great books Dr. Beh has written.
Interested in learning more? Check out this other blog post on Mal de Debarquement Syndrome
here.
Want to learn more about MDDS, and other vestibular tools from the experts and be a part of a supportive community to get back to your daily life? Find out more at this link: https://tvd.flywheelstaging.com/about-group/
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
In Vestibular Group Fit, Dr Madison Oak and Vestibular PT Cheryl Wylie, MPT talk all things BPPV and vestibular migraine. They discuss what BPPV is, what assessment and treatment look like, and Cheryl’s amazing app Healing Vertigo (check it out here). There’s great conversation too revolving around a very common yet difficult task, am I dizzy with a vestibular migraine flare, or BPPV? Read on for some background, or jump to the differences between BPPV and VM at the of this post.
Cheryl Wylie has been working in vestibular rehabilation for 13 years. Throughout her time traveling, she realized how common BPPV is, yet how difficult it can be to get it treated for those outside of big cities and specialized therapists. The app Cheryl created, Healing Vertigo, is designed for patients to learn how to address BPPV themselves.
BPPV stands for “Benign Paroxysmal Positional Vertigo”. This is a common vestibular condition, and gets its name from its own characteristics.
Benign: Not harmful (Don’t worry, we know firsthand how disruptive, scary and down right uncomfortable BPPV is…we have had it! They used the term benign in naming BPPV due to the fact it is not considered life threatening.)
Paroxysmal: sudden onset
Positional: certain head/body positions bring on symptoms
Vertigo: sensation of motion or spinning
We’ll keep this review brief, but feel free to check out this previous post that dives deep into all things BPPV here.
Our vestibular system has 3 semicircular canals. These canals are filled with fluid and sit at different angles. Their job is to detect angular motion (are we moving sideways, up, down diagonal).
In the otolith of the inner ear, tiny (but heavy for their size) crystals that help detect gravity and motion.
If a crystal breaks away from the otolith and finds it’s way into a semicircular canal, this is the start of BPPV. When this crystal moves through the semicircular canal, the crystal pushes the fluid of the canal at a different rate. Our inner ear is now sending two very different signals of movement to our brain to try and understand. This results in a specific eye movement called a nystagmus (more on this here). This is why testing involves certain head positions, and looking at your eyes to assess any nystagmus present. Nystagmus is important information in addition to head position to know the next course of action, treatment! Here’s a chart of the different nystagmus here.
NOT EVERYONE GETS DIZZY WITH BPPV. Some may not feel dizzy with BPPV, but off balance. This is why it’s important to screen for BPPV in those that are dizzy and those with balance concerns to rule out BPPV.
Vestibular migraine is a neurological condition that can result in a variety of unpleasant symptoms. Common symptoms of vestibular migraine include: brain fog, light/sound sensitivity, neck pain, tingling, vision changes, and dizziness and/or vertigo. For more background check out our beginners guide to vestibular migraine.
Those with vestibular migraine have most likely been treated for BPPV. The kicker here though, is not all had BPPV. Unfortunately, this results in people getting treated for BPPV over and over, with no change in symptoms or feeling worse than before. This is because vestibular migraine can result in positional dizziness, but is not due to BPPV. This is why it’s important to understand the mechanism and nystagmus of BPPV to determine if treatment is warranted, or if it is due to a vestibular migraine attack.
BPPV charactersistics:
Vestibular migraine characteristics:
It’s hard to know the difference between BPPV and vestibluar migraine. Hopefully this list helps point you in the right direction. BPPV needs to be treated with a repositioning maneuver to improve. A vestibular migraine needs to be treated during a flare, and then work on managing symptoms and increasing your migraine threshold. If you’re unsure, schedule with your vestibular PT for an assessment for BPPV or check out Cheryl’s Healing Vertigo App (website here, video presentation here)
Want to learn more about what to expect with BPPV assessment and treatment, debu7nking BPPV myths, reducing BPPV risk and other vestibular tools from the experts and be a part of a supportive community to get back to your daily life? Find out more at this link: https://tvd.flywheelstaging.com/about-group/
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
Neck pain and dizziness is a common symptom that can have a significant impact on an individual’s daily life. It can also involve migraines, making it challenging to know where to start in finding relief. It’s important to address the root cause of the pain for long term relief and management. In this blog post, we will explore the connection between neck pain, migraines, and dizziness, and neck pain exercises.
The neck is made up of several small vertebrae, muscles, and ligaments that support the weight of the head. When these structures become injured or strained, it can cause pain that radiates to other areas of the body, including the head. Neck pain can be associated with migraine, either as a prodrome or interictal symptom. This can result in neck pain and dizziness, especially if you have vestibular migraine.
Some report feeling like their headaches start at their neck, or neck massages or stretching will set off a migraine. This lets us know that the neck is involved, and we want to continue with neck treatment BUT we need to be careful how much neck work is done at any given time to avoid setting off a migraine or headache.
Others feel like working on their neck helps improve their headache or relieves in entirely. This is great news and also tells us the neck is involved, but we can approach the neck in a different way, using neck pain exercises, stretches, manual work and other treatment options for symptom relief and long term management.
Neck pain and dizziness are commonly paired together. When dizziness comes on, it’s natural for our body to tense up and try to limit head movements in attempts to reduce dizziness. Sometimes neck pain from an injury or tension adds to your body’s general stress and discomfort, amplifying overall discomfort and dizziness. There are also sensors in our neck that talk to our brain so we know where our head is in space. If these signals aren’t matching up with the other movement sensors in our body, or our brain is having a hard time integrating all this information, we can feel dizzy, bobble head like, spacey, and more.
Neck pain can have many different causes, but some of the most common include:
The symptoms of neck pain can vary depending on the cause of the condition. Some common symptoms include:
The treatment for neck pain and dizziness will depend on the underlying cause of the condition. In some cases, the symptoms may go away on their own with time and rest. In other cases, medical intervention may be necessary. Some common treatments include:
Here are a variety of exercises and stretches that can help alleviate neck pain and improve mobility. Again, this can vary person to person based on the root cause of neck pain. This may assist with neck pain and dizziness, or reducing headache/mgraine frequency and intensity, or a combination of things. Listed below are common exercises used in neck pain treatment. Consult your doctor or physical therapist to make sure you’re cleared to exercise and finding the exercises that are best for you.
Neck pain and dizziness are very common and can come hand in hand. The exercises listed above can help relieve tension in the neck, shoulders, and upper back, which can reduce pain and improve mobility. It is important to consult with a healthcare professional before beginning any exercise program to ensure that the exercises are safe and appropriate for your specific condition. By incorporating these exercises into your daily routine, you can reduce neck pain and improve your overall quality of life
Want to learn more about neck pain, with example progression and exercise plans and other vestibular tools from the experts and be a part of a supportive community to get back to your daily life? Find out more below:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
Here is a beginners guide to vestibular migraine. We’ll cover the difference between migraine, vestibular migraine, management tips and tricks, and when to start vestibular rehabilitation (VRT).
In general, migraine is a neurological disorder and has various symptoms that can be present. Here is a list of some common symptoms associated with migraine:
Migraines act differently with each person. A common misconception is that a migraine is only a bad headache, or if you know someone with migraines and their symptoms are different than what you experience you think “oh well I don’t have migraines because they’re nothing like my friends”. If it’s impacting your life, it’s worth talking to a medical provider about!
Vestibular migraine accounts for 3% of all migraines. This subtype of migraine has specific symptoms relating to the vestibular system (vertigo, imbalance, dizziness, brain fog, feeling “off”, lightheadedness etc).
The International Classification of Headache Disorders criteria for vestibular migraine are:
click here for the research article that outlines this criteria.
The big thing to remember here is that not all vestibular migraines have head pain/headaches. Headache can be present, as well as the other symptoms on the list above in addition to vestibular symptoms.
The 5 phases are:
VRT is beneficial in addressing residual symptoms after migraine attacks, or the interictal symptoms experienced in day to day life. VRT is most effective when attacks are mostly under control. If you’re having multiple attacks in a month, or you’re having a hard time getting symptoms under control, VRT may not be appropriate at that time. A couple of sessions may be helpful for education to try various methods to get symptoms under control, or addressing neck pain through gentle stretching, manual work, postural and ergonomic education).
VRT is most beneficial when your migraine is under control. Using habituation principles to improve interictal symptoms is best done when your vestibular migraine is under control. If your migraine and symptoms aren’t well managed, trying to do VRT is like throwing gasoline on an already raging fire and hoping it burns out. This is why VRT can make you feel worse. It’s important to have a therapist familiar with vestibular disorders and vestibular migraine to guide and dose your VRT appropriately.
If you begin to feel an attack coming on, you want to initiate your plan as soon as possible to try to stop th eattack or minimze the severity or time of symptoms. This may look like:
There’s a lot of great content on tis website for vesitbular migraine, I tried to include most of it here but might have missed some. Vestibular Group Fit is a great place to find all this information presented to you in one spot with excellent resources, with a community of others to provide their own experience, advice and guidance for symptom management, lifestyle changes, and support with movement.
Want to learn more about vestibular migraine management and be a part of a supportive community to get back to your daily life? Find out more at this link: https://tvd.flywheelstaging.com/about-group/
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
Dr. Alexandra Smith is based in Santa Fe, NM (you can find her clinic here) and works to identify, diagnose, treat and prevent various diseases, injuries or defects of the ear. Audiologists are also able to assist their clients with maintaining good hearing and can assist with hearing devices. Dr. Smith perform audiology testing for vestibular disorders and is going over them in more detail to help you better understand your test results and know what to expect. If you think you’d benefit from audiology testing for vestibular disorders, talk to your doctor about comprehensive audiology testing.
This blog post covers some content Dr. Smith covers with Dr. Madison Oak, vestibular physical therapist for our vestibular group fit members. These tests are common when evaluating for vestibular disorders but aren’t always well known or explained. Read below to learn more about audiology tests for vestibular disorders and what they can help tell you about your vestibular condition.
A specialty within audiology which includes:
Using audiology tests for vestibular disorders can be another piece of information to consider with other testing (MRI, physical therapy, occupational therapy, ENT, Neurology etc) to best determine a plan of care to manage your vestibular condition.
What does audiology testing and vestibular disorders have to do with each other? Anatomically, our inner ear has both a spatial awareness system (the vestibular system) AND hearing portions (the cochlea) that make up the inner ear. The nerve that connects our inner ear to the brain also branches from the same nerve to reach both of these sections. It is also common to have other ear symptoms or hearing changes with vestibular conditions, so it’s important to get testing done by a specialist in the hearing portion of our inner ear, an audiologist!
Common audiology tests for vestibular disorders include:
Below, we’ll go into more detail on what these tests measure, what to expect, and how these tests can help with vestibular diagnostics.
You are in control and can stop at anytime, it is NOT AN ATTACK.
YES! Certain vestibular conditions will not show up on this testing. Migraine will not show up on MRI, CT scans, ECOG VEMP or VNG or audiograms. These tests can still be helpful for these conditions that require a diagnosis of exclusion to rule out other conditions that these tests can reveal. Audiology tests for vestibular disorders can help lead us to identify specific diagnoses. If testing comes out normal, audiology tests for vestibular disorders can also help consider other diagnoses that would show normal testing.
Audiology tests for vestibular disorders is one piece of testing to be considered with other providers testing and listening to what you’ve experienced. Listening to your experience and looking at all the test results can help get the right team of providers (OT, PT, Neuro, ENT) in your corner to start your healing journey. It’s natural for this team to change slightly, or change focus for periods of time with certain providers based on your needs. Keep your team in the loop so they can help adjust accordingly, they’re here to help YOU.
Want to learn more about vestibular testing, ear pressure, tinnitus and other vestibular tools to get back to your daily life? Find out more at this link: https://tvd.flywheelstaging.com/about-group/
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
Dr. Sheikh is very knowledgeable and has had extensive training to help address and manage headaches, and more specifically migraines. Dr. Sheikh got her MD and then completed her residency at MOntefiore Medical Center in Bronx NY. She then went on to complete two fellowships; a vascular fellowship and then a fellowship in “Headache and Facial Pain” Harvard Medical school and is now an adjunct professor at Ichan Medical school at Mt Sinai in New York City. Being in a clinic setting for over 6 years now, Dr. Sheikh has been treating and helping her patients manage complex headaches with a holistic approach. She’s very up to date on current medication options and other complementary treatments that she is sharing with us in Vestibular Group Fit!
“I like to think of migraine as a disease, and headache as a symptom…migraine is a genetic neurological disease and headache is a symptom of migraine”. Dr. Sheikh
Migraine is more than just a headache! Migraine may have a headache (not in all cases) but also vertigo and dizziness, light or sound sensitivity, brain fog, or visual auras. Headache associated with migraine is most reported disabling symptom, but others may have dizziness or sound sensitivity as their most prominent symptom. For a more indepth look at vestibular migraine, here’s a helpful article to review, click here.
How do we treat migraine holistically?
Treatment for vestibular migraines is overall similar to other migraine management, however Vestibular Rehab Therapy with a physical therapist can be helpful and neuromodulation devices (cepahly or gammacore for example) can be good options to consider when addressing vestibular migraine!
Contact info for Dr. Huma Sheikh:
Instagram: @headachesnyc
Website: Headachesnyc.com
Dr. Sheikh talks more about family planning, diet, and sleep in the premium content in Vestibular Group Fit. Found out more at this link: https://tvd.flywheelstaging.com/about-group/
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
Our body uses three main systems to know where we are in space and what needs to be done to be balanced and safe. Today’s focus is going to be on our eyes and inner ear working together with visual vestibular integration. Let’s talk about what this is, what happens when visual vestibular integration isn’t working, and what to do about it!
If you need a refresher on our body’s main systems for balance, click here to review our What is Balance article before reading on.
Visual vestibular integration is combining the information from our eyes and inner ear to carry out tasks to help with our balance. These two systems work closely together to help keep our vision steady when moving our body, head, or both at the same time. This is known as the vestibulo-ocular reflex (VOR).
The brain also uses visual and vestibular information to gather as much information about your environment and compares all this information to get as clear a picture as possible. This creates checks and balances to ensure that our brain knows what is going on and can respond correctly.
A good example of this is when you’re sitting in a parked car. The car next to you starts to back up, and you feel like you’re moving briefly. This is your eyes picking up the car backing up next to you and saying “hey we’re moving what are we going to do about it”. You quickly realize that you aren’t moving because your vestibular system kicks in and says “actually we aren’t moving, the eyes are seeing that other car move, we are SAFE”.
If you read the previous article What is Balance, you know there’s the proprioceptive system. We do use our proprioceptive system to compare sensory information with our eyes and inner ear- especially on uneven surfaces and to make sure any body movements are accurate and correct. This relationship is not the main focus of this article but it does exist! We’re focusing on the connection between the inner ear and eyes because of certain symptoms people experience when visual vestibular integration isn’t accurate, so keep reading on to learn more.
If the signal from our vestibular system isn’t sending or perceiving the correct information (BPPV, neuritis, VM etc), our brain starts to ignore what our vestibular system is saying and rely more on our visual system. Using only our eyes can result in busy environments making you feel dizzy or like you are moving when you really aren’t. The vestibular system isn’t being used in these situations to double check the information for our eyes. Things like busy areas like malls or restaurants, action scenes in movies, or first person video games can make your symptoms worse. Luckily, there are ways to work on reducing the reliance on your eyes and start using accurate vestibular information to feel better in busy environments.
Balance exercises that challenge vision help promote your vestibular and proprioceptive systems. With practice and gradual progression of these exercises, our brain starts to relearn how to listen to all 3 senses equally again. Consulting a trained and licensed vestibular therapist can help you safely progress these exercises and is strongly recommended. The goal is to start with sitting or standing balance exercises that make the visual and proprioceptive information hard to gather, so your brain has to rely on vestibular input to complete the exercise! This can be done in a variety of ways,a few ways a trained vestibular PT might accomplish this is:
There are many ways to tailor exercise individually and safely. Consult a professional to evaluate your specific needs and assist you in the safe progression based on your needs!
Want to learn more about visual vestibular integration, and other vestibular tools to get back to your daily life? Found out more at this link: https://tvd.flywheelstaging.com/about-group/
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
In general, Persistent Postural Perceptual Dizziness (3PD or PPPD) is a condition resulting in long term dizziness that fluctuates in severity after an initial event or vestibular condition. Let’s break down the diagnostic criteria to better understand what 3PD and if this is something to seek out treatment for.
Food and diet can impact how we feel, and can play an important factor when it comes to the management of certain vestibular conditions. Your doctor may recommend certain dietary guidelines based on your vestibular condition and other factors (medications, other health conditions etc).
For vestibular migraine, certain foods can provoke your symptoms or trigger a migraine depending on how “full” your migraine threshold is on a given day. (click here to learn more about threshold/bucket theory and some additional information on migraine diets). If you’re not sure where to start with changing your diet, a registered dietitian or nutritionist can be a great resource and guidance in exploring how food can be medicine.
Kelli Yates, RDN, LD, CLT is a private practice registered dietitian and specializes in migraine and gut health. She became interested in this area while pursuing her own answers to help manage her migraine beyond medication. Kelli has self guided programs, 1 on 1 help with her personally, and great information that she shares with us all on her instagram (@the.migraine.dietitian).
Kelli notes how food can be medicine as both a preventative and active treatment. In general, food is best used as a long term preventative. For migraine, this long term management of symptoms with food involves learning what foods provoke symptoms or trigger a migraine and in what quantity. Some foods may need to be avoided altogether and others you may be able to enjoy in moderation, it really depends on the person. An elimination diet can help reduce common food triggers for migraine and then you reintroduce foods to determine if they affect you.
Food can sometimes have an immediate effect. Peppermint and ginger can help with acute nausea and initial symptoms. Food schedules can also have a more immediate change on how you feel. Regular meal times/not skipping meals, or healthy snacks throughout the day can be a small change that could impact how you feel.
If you want to hear more from Kelli, follower her on instagram @the.migraine.dietitian or go to her website https://kelliyatesnutrition.com/
Kelli talks more about reintroducing foods, why low histamine diets are only temporary solutions, probiotics, gut health testing and anxiety around food in her talk with Dr. Madison.
Do you want to learn how to manage your vestibular disorder holistically, through diet and more?
Click here to Manage your Vestibular Disorder Better
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
Vestibular disorders, especially Vestibular Migraine, can cause neck pain and cervicogenic dizziness. However, thankfully, these are both manageable with vestibular physical therapy and cervical (neck) physical therapy. The neck is a complex group of muscles, bones, joints, and other soft tissues that can easily make you feel ‘off’ or out of place.
Luckily, that feeling does not have to last forever. Cervicogenic dizziness and other neck dysfunctions are very treatable. One of my favorite ways to manage cervical issues is stretching. Here are my twoi favorite stretches:
Your pec muscles are located in the front of your chest. You have 2 on each side, the pec major, and the pec minor. The pec major is larger and lays on top of the pec minor. To stretch them both, you need to perform 2 different stretches for best results. In this video we see three stretches.The first two stretch the pec major, and the last stretches the pec minor. The further up the doorway you place your hands, the more you’ll get into the pec minor.
If the back of your neck is bothering you, it can come from your chest, but another great stretch is a trapezius stretch, which will help stretch the back of your neck. The back of your neck is made up of quite a few muscles, but the biggest one, which tends to feel knotty, is the trapezius muscle. Here’s my favorite way to stretch the back of my neck. Watch the video, and if you want a second stretch for a similar movement, don’t twist your head!
Other than stretching, many things can help with neck pain. General exercise, improving your posture, and taking breaks from sitting.
Exercise is good for us. Whether or not we’d like to admit it, we know that it’s something we should participate in regularly. There are a few exceptions, but it’s statistically unlikely that you’re in that group of people. If exercise makes you dizzy, or you’re worried that it could make you dizzy, Vestibular Group Fit is the answer to your issue. Vestibular Group Fit is the all-in-one, holistic solution to strengthening your vestibular system, helping you to move, and more! This helps you get rid of your neck pain through movement, and will help you prevent dizziness attacks in the future!
Your posture is just as important as your mom said it would be. If you ever thought that you may be having dizziness BECAUSE of your neck, your posture could be playing a roll. Your posture is in charge of where your head is – it’s all about your neck. If you neck is giving your brain a ‘bad’ signal about where your head is in space, it gets confused and send a dizziness signal. But, it can be treated with Cervical Physical Therapy and Vestibular Group Fit!
Sitting for too long can be harmful to our posture, and if we remember from above, our posture can make us feel dizzy if it’s poor. In a world where we all work from home, it can be easy to get into the routine of sitting at your desk and not leaving until you finish work, except maybe a trip to the kitchen or two (I am guilty of this myself). Instead, it’s vital to take sitting breaks. Every 45-60 minutes stand up, walk to get a glass of water (yay, hydration!), grab a snack, or just take a lap around the house. It doesn’t matter what you do, but set a timer and make it happen! It will help your neck, back, and vestibular system!