In the hustle and bustle of our daily lives, it’s easy to get caught up in the chaos and lose sight of the positive aspects that surround us, especially when we are managing a chronic illness like a vestibular disorder. Amidst the challenges, stressors, and uncertainties, practicing daily gratitude emerges as a powerful tool to foster a mindset of appreciation and unlock a cascade of benefits for our mental, emotional, and physical well-being. Additionally, recent studies have suggested that incorporating gratitude into daily life may offer unique advantages for individuals dealing with chronic illness and dizziness, making this practice even more compelling for those facing health challenges.
Research in neuroscience has shown that the brain is malleable, and its structure can be influenced by our thoughts and behaviors. When we engage in a daily gratitude practice, we are essentially rewiring our brains to focus on the positive aspects of life. This not only promotes emotional well-being but may also have implications for individuals dealing with chronic illness, where maintaining a positive mindset can contribute to overall coping strategies and improved quality of life. Additionally, for those experiencing dizziness, the positive neural changes induced by gratitude may play a role in stabilizing the emotional response to physical symptoms, and reduce the number of physical symptoms we may experience.
Gratitude has been linked to the release of neurotransmitters such as dopamine and serotonin, commonly associated with feelings of pleasure and happiness. For individuals with chronic illness, the neurochemical impact of gratitude may offer a natural and accessible way to elevate mood and potentially alleviate symptoms of anxiety or depression. Similarly, for those grappling with chronic dizziness, the release of these neurotransmitters could contribute to a an easier shift in emotions from negative to neutral or positive, which may positively influence the perception and experience of dizziness.
Chronic stress is a pervasive challenge in modern society, and its detrimental effects on health are well-documented. Engaging in a daily gratitude practice has been found to modulate the body’s stress response. For individuals with chronic illness, managing stress is often a crucial component of their overall well-being, and the stress-reducing effects of gratitude can be particularly beneficial. Additionally, for those experiencing dizziness, which can be exacerbated by stress, gratitude may act as a protective factor, helping to mitigate the impact of stress on both mental and physical health – as well as chronic dizzy symptoms themselves.
Life is filled with ups and downs, and our ability to navigate challenges depends, in part, on our mindset. Gratitude acts as a powerful tool for shifting perspectives, especially in the face of adversity. For individuals dealing with chronic illness, the ability to find moments of gratitude can provide a sense of control and agency, fostering emotional resilience in the midst of health-related challenges. Similarly, for those experiencing dizziness, cultivating a positive perspective through a regular gratitude practice may contribute to a solid emotional foundation in the face of physical symptoms, which makes resilience in light of an attack easier. No, it’s never ‘easy’ but we do want to build a toolkit of ways to make it easier overall. Gratitude practices help!
Gratitude is not always an individual practice; it has the remarkable ability to strengthen social bonds and foster a sense of community. For individuals with chronic illness, the support of friends and family is often integral to their journey. Expressing gratitude within these relationships can deepen connections and provide a robust social support system. Likewise, for those dealing with dizziness, a supportive social environment cultivated through gratitude may serve as a crucial pillar in managing the emotional and practical aspects of their condition. For example, working with your loved ones on how they can specifically help you during attacks, practicing gratitude when they help, and also helping others in your life while they are grateful for your help. This is a multidirectional relationship and help can be both given and received; and the practice of gratitude goes both ways.
In times of crisis or personal struggle, the practice of gratitude serves as a coping mechanism. For individuals with chronic illness, navigating the emotional toll of their condition requires adaptive coping strategies, and gratitude can provide a constructive and empowering outlet. Similarly, for those experiencing dizziness, integrating gratitude into their coping toolkit may be a part of a holistic approach to managing the emotional challenges associated with the unpredictability of their symptoms. Gratitude becomes a psychological anchor during challenging times, helping individuals with chronic illness and dizziness to weather the storms of their respective health journeys with greater resilience.
The mind-body connection is a well-established concept, and the impact of gratitude extends beyond the realm of mental and emotional well-being. For individuals with chronic illness, maintaining physical health is often a delicate balance, and gratitude practices have been associated with improved immune function and better sleep quality. Similarly, for those experiencing dizziness, the potential positive impact on physical health through gratitude may contribute to an overall sense of well-being and gratitude for their own bodies. For example, on the days where you’re feeling better it’s often helpful to thank your body for what it did that day! After moving your body, or doing an activity, or just after a long day shifting from ‘I feel so tired, I can’t believe my body can’t do as much as it used to,’ to ‘I am grateful for what my body was able to do today’ can be very impactful.
A daily gratitude practice is not merely a tool for maintaining the status quo; it serves as a catalyst for personal growth and self-improvement. For individuals with chronic illness, the journey is often marked by continuous learning and adaptation. Gratitude becomes a vehicle for embracing change, learning from experiences, and evolving into a stronger, more resilient self. For those dealing with dizziness, the practice of gratitude may encourage a growth-oriented mindset, empowering them to navigate the challenges of their condition with a sense of purpose and self-discovery.
To harness the transformative power of gratitude, it’s essential to establish a consistent and intentional daily practice. For individuals dealing with chronic illness and dizziness, the incorporation of gratitude into daily routines provides a structured approach to managing the emotional and physical aspects of their health journey. From keeping a gratitude journal to expressing appreciation in relationships, these actionable steps empower individuals to make gratitude an integral part of their lives, offering a practical and holistic approach to well-being. By demystifying the process and offering practical guidance, this section aims to inspire readers, including those facing health challenges, to embark on their own gratitude journey.
The practice of daily gratitude transcends a mere habit; it becomes a catalyst for profound transformation in our lives. From rewiring the neural pathways in our brains to fostering emotional resilience and contributing to holistic well-being, gratitude emerges as a powerful force that can positively impact every facet of our existence. As we navigate the complexities of modern life, cultivating a daily gratitude practice offers a simple yet potent tool for unlocking joy, resilience, and an enduring sense of fulfillment.
Did you make it to the end of this article? Comment on the Facebook Post your favorite tip for gratitude, or reason to practice gratitude, for 2 extra bonus points!
Learn how to approach parenting with chronic illness to tackle high symptom days, address parenting guilt and find acceptance with founder of Parenting with Migraine, Marina Medved-Lentini. Through her own personal experience she has created a platform to offer support, resources and guidance for other parents facing similar challenges.
Website is: here or you can copy and paste into your browser: https://parentingwithmigraine.com/
Instagram: @parentingwithmigraine here.
Marina has been living with migraine disease throughout her life. Her migraine attacks were episodic during her teenage years and through college and law school. After becoming a parent, Marina began to experience chronic migraine. Finding migraine support groups on social media helped Marina find hope, support, and information to work with her medical team to get her migraine managed. Her experience has motivated her to share her knowledge with others and become a migraine advocate. In vestibular group fit, Marina and Dr. Madison talk about screen time, parent guild, ways to prep and adapt when parenting with chronic illness.
Parent guilt can come in feelings of inadequacy, guilt of missing out on precious moments, or not feeling present or providing enough for your family. We tend to be our own biggest critic, and it’s important to look at these thoughts and feelings to determine what might be stemming from self doubt or own inner critic.
Having a chronic illness doesn’t define you. Parenting with chronic illness doesn’t define your value as a parent. You are strong and your provide your own set of strength and perspective as a result of your lived experience, chronic illness included.
Tips to help combat parent guilt:
Sometimes parent guilt comes in the form of potentially passing on a chronic illness such as migraine to your child. Migraine disease does have a hereditary component. Knowing about the signs and symptoms of your chronic illness in children can help identify the need for intervention quickly. Remember, there is so much more to a child than a chronic illness. Kids are resilient and have repeatedly reminded me that there’s something to be excited about and get the most out of life.
In the case of pediatric migraine, Marina shares resources on learning signs and symptom of migraine in kids to help get them proper resources. Migraine at school is a great resources for parents, educators and how to help support students. check them out here!
Part of parenting is having to be flexible and adapt to changing situations. This is even more true when parenting with chronic illness. Having some items prepared can help on days when you’re not feeling your best. check out some tips below.
Finding acceptance and self compassion has been noted by many as a main part of living with a chronic illness. Acceptance doesn’t mean you’re giving up but learning to live with a chronic illness. This includes finding ways for best management while coming up with solutions to keep doing your everyday. Your plan for you day might change or look completely different than you expected and that’s okay! Acceptance helps us address the stress and change of the unknown. We cover this more in our self compassion blog and premium content in vestibular group fit and more on acceptance in this blog post.
Want to learn more about how to parenting with chronic illness, household tasks and social situations and other vestibular tools from the experts and be a part of a supportive community to get back to your daily life? Find out more at this link: https://tvd.flywheelstaging.com/about-group/
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
Learn tips for dating with a vestibular disorder. We cover dating, relationships and intimacy with Dateability cofounder Jacqueline Child.
Dating with a vestibular disorder can be challenging or intimidating to begin after a receiving a vestibular diagnosis. Jacqueline Child is a co-founder of Dateability and talks with Dr. Madison oak about dating and intimacy with chronic illness and disabilities. Jacqueline encountered ableism on other dating apps, and experiences impacting her self esteem. In october 2021 after a feed tube surgery, Jacqueline expressed her wish for a dating app tailored to people like herself. Jacqueline’s sister proposed they make this wish a reality. Dateability aims to foster understanding, compassion and connection to provide a safe space where chronic illness is not a deterrent to finding meaningful connections and love. Learn more about this app here.
1.You’re more than your vestibular condition! Talk about other interests, projects or hobbies you have going on or hope to start!
2. Explaining your vestibular condition can be short and simple at first. Jacqueline compares it to how you’d explain your condition to a child. Remember, you’ve learned so much about your condition, that it can be overwhelming to someone that is learning. This can vary based on their exposure to the medical field as well (vocabulary and health literacy etc). Keep it easy, if they have follow up questions and you want to answer them, go for it!
3.If there’s an activity that doesn’t work great for you, let your needs known and suggest an alternative activity. When dating with a vestibular disorder, certain activities might not be the best for you. Instead of saying no to their suggestion, feel free to let me know that won’t work for you and suggest an alternative activity that works for you. For example swap out a bike ride for a picnic in a park, or maybe a tram bike that moves slower and multiple people steer and peddle.
4.Be honest about your needs early on. You don’t have to list them all out day 1, but when something comes up, mention the relevant information or accommodations needed. For example, if someone suggests a movie and the time is late. Casually mention that staying up late isn’t great for you, and see if the there’s an earlier showing.
5.Communication is key when dating with a vestibular disorder, and discussing your vestibular condition is a very vulnerable thing to do. Practice can help, whether it be with close friends and family, or going on some dates just to practice how you share your story with someone new.
Intimacy and sex is an area that is important to address when it comes to dating with a vestibular condition and relationships. This part of romantic relationships can be a source of apprehension when dating or looking for a long-term partner. Communication here is so important (sensing a theme about communication?).
Having a conversation outside of intimacy and sex can help. Knowing modifications or positions that are best, or how to handle situations when a pause is needed beforehand will help in the moment to do what’s best for your body. This may feel uncomfortable or awkward, but communication is about trust, and knowing your partner cares about you to support you and want what’s best for you in all aspects of life.
Want to learn more about dating, relationships, other vestibular tools from the experts and be a part of a supportive community to get back to your daily life? Find out more at this link: https://tvd.flywheelstaging.com/about-group/
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
EFT or Tapping is a free and easy way to address unpleasant experiences, emotions, memories and you guess it, dizziness! EFT practitioner Rochelle Schulz dives into what EFT is, the benefits and how to do it anywhere.
Rochelle Schulz is an EFT practitioner offering internationally accredited and certified services. With a focus on trauma-informed training, she creates a safe and non-judgmental space for adult individuals worldwide, both in-person and online.
Rochelle’s goal is to assist clients in healing, personal growth, and regaining confidence. By delving into the subconscious mind, we uncover and release patterns that have been running in the background, including traumas, phobias, cravings, and physical pain. Working together, Rochelle’s clients can reclaim their authentic selves and experience a life of meaning, joy, and purpose.
Rochelle Schulz specializes in guiding clients through uncomfortable emotions and facilitating a smooth journey for their brain and nervous system, minimizing dysregulation.
Here website is linked here to learn more about Rochelle’s services and offerings. She assist with individuals, group sessions, creating scripts to use on your own tapping sessions, free consultations and more!
EFT or tapping has been around since the 1970s and involves tapping with your fingers on different pressure points on the body. These pressure points are the same ones used in acupuncture but without the needles. Rochelle notes that EFT is an effect strategy for stress relief, boost immune system function, and turn off genes related to chronic illness.
EFT combines the concepts of energy pathways (meridians) rooted in acupuncture with somatic and cognitive behavior therapy to calm our nervous system and address difficult emotions and memories.
It’s effective, can be done anywhere, anytime, and you can do it yourself for free!
EFT is a bottom up therapy. Typically, when addressing dizziness, emotions, trauma etc, therapies are focusing on the head/brain. The brain is important in our experiences, but our cognition only makes up 20% of that experience. Rochelle goes on to explain that the body stores up to 80% of our experiences and memories in 4 different ways. They are:
Bottom up therapy looks to address the 80% of experiences and memories stored in our body. To process and calm our nervous system in this way, bottom up therapy is looking to address the majority of our body that other interventions ignore.
EFT/Tapping can be used on three different levels:
EFT aims to find the root cause of limiting beliefs or traumas and release them, allowing us to let go of old programming, retrain our brain to have positive neural pathways, and live more freely. EFT tapping for dizziness can help break the dizzy anxious cycle, find acceptance, and retrain our body/brain neural connections for long term results. This takes time and practice!
Using one or both hands, listed below are acupressure points used in EFT/Tapping.
Some find that areas by the eyes or peripheral vision increased dizziness. If you notice this, choose tapping points that feel best to you (collar bone, under the arms, top of the head etc). Sometimes eyes closed or laying down can help this as well.
1. RANK THE INTENSITY
Rank the intensity of the issue on a scale of 0–10.
2. TAP ON THE SIDE OF THE HAND
Tap with 4 fingers the edge/palm of your hand, near the base of your pinky finger.
“Even though I have [insert emotion, symtpom etc] in [insert location in your body] when I think about this [feeling, memory, experience, situation], I deeply and completely accept myself.”
Allow your body to soften and relax, be present with any symptoms or discomfort. You can acknowledge sensations without needing to control them.
Thank your body for its effort to protect you and give yourself permission to receive instead of resisting.
3. TAP WITH REMINDER PHRASE
The reminder phrase should acknowledge the issue and convey self-acceptance in spite of it.
some examples are:
Using two or more fingertips, tap approximately 5x on each point listed above for 1- 2 rounds while repeating your reminder phrase. This can change with each session, and pick the tapping points you feel best with. Avoid the ones that make you dizzy.
4. REASSESS THE INTENSITY
Rank the intensity of the issue on a scale of 0–10. Continue repeating rounds until the intensity reaches zero or plateaus.
The tapping solution has a website and a smartphone app to help learn and perform guided tapping sessions. There’s a free and paid version! Check it out here.
Work with Rochelle Schulz! She has individual, group and free consultation services. Check out her website here.
Want to learn more about different benefits of various tapping points, a guided tapping session with Dr. Madison and Rochelle Schulz, other vestibular tools from the experts and be a part of a supportive community to get back to your daily life? Find out more at this link: https://tvd.flywheelstaging.com/about-group/
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
Energy conservation (or pacing) is a way to listen to your body and strategize your day to get chores done while minimizing fatigue and dizziness as much as possible. Read on to learn how to get through your ‘to do’ list and daily tasks with dizziness, learn why it’s hard, ways to get it done today!
Use a 0-100% battery meter to gauge your energy levels and dizziness on any given day. Keep in mind tasks you do will drain your batter, just like using your phone will drain it. Don’t let your energy battery (or phone battery) reach zero. It’s easier to charge when you’re at 70-80% than when you’re at 10%.
Take a look at these 6 tips to strategize your day. Consider your energy/dizzy battery for the day and these tips to map out your day. Reminder, it’s okay to ask for help, to prep part of a task for a later day (like soaking dishes), or delegate to another family member or service.
Some days we have big plans to get things done, but we wake up with increase symptoms, fatigue, and a lower body battery. That’s okay, it’s not your fault and you are not a failure. Focus on what can be done, including self care to have the capacity for your list another time.
In this section we’ll cover some common household chores or daily tasks and discuss why they’re challenging and ways to make them easier.
Our premium content members also have guidance on movements and strength exercises to increase their tolerance to these tasks. Doing exercises and movement will make tasks easier to do in the future. Learn more here.
Why it’s difficult:
How to pace with dizziness:
Why it’s difficult:
How to pace with dizziness:
Why it’s difficult:
How to pace with dizziness:
Why it’s difficult:
How to pace with dizziness:
Why it’s difficult:
How to pace with dizziness:
Why it’s difficult:
How to pace with dizziness:
Learn why wall these tasks are challenging, ways to get these tasks done now and products that help, and how to work on movements to improve all of the tasks listed today! All of this and more is included in our supportive community at Vestibular Group Fit! Find out more at this link: https://tvd.flywheelstaging.com/about-group/
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
Jaw pain and dizziness are related and have an interesting relationship. It can be challenging to know which one causes the other. This article outlines 3 ways TMJ and dizziness are related, including TMJ and migraine, and 5 ways to help mange TMJ pain and dizziness.
TMJ stands for “temporomandibular joint”. This is where the mandibular fossa of the temporal bone of the skull and mandibular condyle of our jaw bone meet. This makes the joint we commonly refer to as the jaw. Some may say “I have jaw pain” and point to the TMJ, others may say “I have TMJ issues”.
The anatomy around our jaw includes a lot of important systems that are connected to dizziness and migraine. Read below to learn how jaw pain and migraine, jaw pain and dizziness, and jaw and neck pain are related.
The best way to find out if your jaw pain and dizziness are related is during an examination. If assessment of your jaw or neck recreate your symptoms or make current symptoms worse, it is something that should be addressed in your plan to improve your dizziness. Based on other findings from your exam, there might be other areas your provider would like to address first. In some cases, as other areas improve, TMJ or neck pain may improve naturally. If other areas start to improve but you’re still noticing TMJ or neck pain, then a more focused approach should be used. It’s an important conversation to have your with your medical team and your plan may change over time, so keep having those conversations!
Want to learn more about TMJ assessment, surveys, and TMJ exercises and other vestibular tools to get back to your daily life? Find out more at this link: https://tvd.flywheelstaging.com/about-group/
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
Travel plans can be popular this time of year to spend holidays with family and friends, warm vacation destinations, or other special occasions. Overall, no one really loves traveling, but it can be even more challenging with a vestibular condition.Read below to find some lists of our favorite travel tips with a vestibular disorder and for some specific to different travel types!
Here are our Top 10 effective tips to help prepare for your upcoming trip and traveling with a vestibular disorder successfully. Keep reading to learn more about how to travel with a vestibular disorder based on specific types of travel!
6. Pack your own pillow. Having your own pillow helps ensure a good nights sleep at your new destination. Some people will order and ship a pillow similar to theirs to where they are traveling to cut down on packing!
7. Stay hydrated throughout your travel day. Taking additional breaks for the bathroom can help keep you active and use it as an opportunity to check in with yourself and take a break if needed.
8. Get a good night’s sleep the night before
9. Eat a good breakfast on travel day.
10. Try to stay active before and during travel. Light walks, different position changes while sitting, seated marches, seated kicks, standing heel raises or sitting/standing can help keep your body moving.
Driving is a common challenge I hear when working with those who have vestibular conditions. If you’re looking for more driving tips, check out our other blog post on driving here. This list is geared more towards longer driving trips to reach your travel destination. Let’s dive into how to travel with a vestibular disorder by car:
Traveling by plane can be really daunting, especially after living with a vestibular condition. We at The Vertigo Doctor want you to consider flying as an option, especially if it cuts down travel time considerably. Less time spent with the stresses of traveling means the sooner you can start to rest, relax, and recover! Here are ways for traveling with a vestibular disorder by plane:
Trains might not be as common in the United States for longer trips, but these tips may help if you take a train for your daily commute. If you’re also trying to travel to another country or continent that uses trains more for travel such as Europe, check out these tips on how to travel with a vestibular disorder by train:
Whether it be by ferry or a an afternoon on the lake, boating is certainly a way of transportation to be prepared for! Here are some considerations when traveling with a vestibular disorder by boat:
If you found this article helpful, check out this other article on our site that has additional information on traveling with a vestibular disorder by clicking here.
Want to learn more about managing your vestibular condition with travel, return to driving, hormonal impacts, and other vestibular tools to get back to your daily life? Find out more below!
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
Dr. Sheikh is very knowledgeable and has had extensive training to help address and manage headaches, and more specifically migraines. Dr. Sheikh got her MD and then completed her residency at MOntefiore Medical Center in Bronx NY. She then went on to complete two fellowships; a vascular fellowship and then a fellowship in “Headache and Facial Pain” Harvard Medical school and is now an adjunct professor at Ichan Medical school at Mt Sinai in New York City. Being in a clinic setting for over 6 years now, Dr. Sheikh has been treating and helping her patients manage complex headaches with a holistic approach. She’s very up to date on current medication options and other complementary treatments that she is sharing with us in Vestibular Group Fit!
“I like to think of migraine as a disease, and headache as a symptom…migraine is a genetic neurological disease and headache is a symptom of migraine”. Dr. Sheikh
Migraine is more than just a headache! Migraine may have a headache (not in all cases) but also vertigo and dizziness, light or sound sensitivity, brain fog, or visual auras. Headache associated with migraine is most reported disabling symptom, but others may have dizziness or sound sensitivity as their most prominent symptom. For a more indepth look at vestibular migraine, here’s a helpful article to review, click here.
How do we treat migraine holistically?
Treatment for vestibular migraines is overall similar to other migraine management, however Vestibular Rehab Therapy with a physical therapist can be helpful and neuromodulation devices (cepahly or gammacore for example) can be good options to consider when addressing vestibular migraine!
Contact info for Dr. Huma Sheikh:
Instagram: @headachesnyc
Website: Headachesnyc.com
Dr. Sheikh talks more about family planning, diet, and sleep in the premium content in Vestibular Group Fit. Found out more at this link: https://tvd.flywheelstaging.com/about-group/
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.
We all were affected by the COVID-19 pandemic, and because of that we have all heard of Long-COVID, and hopefully, about Long COVID Rehabilitation. And, no matter what happened to you or around you during the pandemic, somethings has become more and more prevalent over the last few months is Long-COVID. Long-COVID is a hot topic, and I want to start off by saying one thing: You are NOT making it up. I have worked in chronic illness since I gratulated from Physical Therapy school and I understand the gaslighting in the medical system, especially the US medical system. BUT, I am here to tell you that you are making that up. Most people with the COVID-19 virus recover within 1 week, but that’s definitely not the case for everyone. According to UCLA health, one in three people with a COVID diagnosis will develop Long-COVID.
So, today let’s talk about it: what is Long COVID Rehabilitation?
You are not making it up! I want you to know that this is not in your head.
Your symptoms, whichever way you may be presenting, are very real. I have seen many providers who either ‘don’t believe you’ or ‘don’t believe Long-COVID would be so severe’. But, I am here to say that there are many different and debilitating symptoms!
The biggest issue we are having is that we don’t have enough research on covid and Long-COVID, so many provider just don’t know what to do about it at this point.
Long-COVID symptoms can be incredibly variable and truly span anywhere from fatigue to cardiovascular issues. Your symptoms can be cardiovascular, respiratory, general fatigue, fever, difficultly sleeping, and more. Because we just don’t know enough about Long-COVID right now, we can’t make an exact list. But, if you had COVID and now you’re experiencing symptoms you did not have before it could definitely be correlated with Long-COVID. Long COVID symptoms could last anywhere from a few weeks to years. COVID began in early 2020, and patients have been dealing with Long-COVID symptoms since that time. It’s difficult to say at this time if they last forever or not. However, it does seem like we are able to treat Long-COVID, though through LongCOVID rehabilitation and medication.
Long-COVID is known to cause many different symptoms, as we discussed above. One of the overarching symptoms that we did not touch on above is dizziness. As a provider who treats dizziness and vertigo, I have been treating SO much Long-COVID. It started with just one patient who had dizziness related to COVID-19, but has been a very big influx of my caseload, especially for someone who treats Vestibular Migraine and PPPD usually.
Long-COVID Dizziness is thought to come from the virus infecting and inflaming your inner ear. Your inner ear controls balance and equilibrium, and spatial awareness. Without this organ functioning accurately, you will feel dizzy, light headed, and other related symptoms. Another Long-COVID dizziness diagnosis is POTS. POTS, or Postural Orthostatic Tachycardia Syndrome is an autonomic dysfunction. Autonomic dysfunction is your automatic systems in your body. Everything from digestion to heart rate and breathing are controlled by your autonomic system, because these are all involuntary. And, they’re REALLY important! Long-COVID rehabilitation, can help regardless of the type of dizziness you are experiencing after a Long-COVID diagnosis!
Long-COVID rehabilitation has had its difficulties in treatment, but it’s nothing that my patients and I haven’t been able to trouble shoot. Long-COVID is not one of those sicknesses that you get and then suddenly you just get 100% better again. There may be adaptation and compensations you have to make in your life, and your lifestyle may look a little bit different than it did pre-COVID. However, I do find that specific rehabiltation directed at each of your symptoms is incredibly effective in getting you back to at least some of your ‘normal.’
Long-COVID is complex, and I like I said above, we just don’t know enough about it. But, we have seen that Long COVID rehabilitation is effective. Your symptoms can range anywhere from looks like POTS to seeming like a concussion. No matter what the symptoms, Long-COVID treatment is rehabilitation. Long-COVID rehabilitation providers are typically physical therapists and occupational therapists. There are also medical providers who have branched into this kind of medicine as well. There are a few studies that have shown to be somewhat effective in treatment with medication. At this time it is all preliminary information. UCLA and Stanford both have excellent West coast treatment centers. Additionally, there are a few others like in Kansas City, Germany, New York City, and more!
Treating Long-COVID from a medical standpoint and a rehabilitation standpoint is the best way to go about treatment overall. I recommend finding both a medical doctor and a physical or occupational therapist to help you rebuild strength, improve visual symptoms, reduce dizziness, and more.
Long-COVID rehabilitation will look like a few different kinds of physical therapy combined into one treatment plan.
At this point, there are not many experienced Long-COVID rehabilitation practitioners, none of have more than a year or so of experience. However, we all piecing together information the best that we can! If you are looking for a provider, I recommend calling around to physical therapist and occupational therapist offices and asking if they’ve had any experience working with Long-COVID rehabilitation patients. And, if there is not someone in your area, try and find someone who is at least willing to learn with you!
Currently, I am taking patients for Long-COVID rehabilitation in the following states via telehealth: Wyoming, Virginia, Maryland, California, New York, and New Jersey!
If you’d like to schedule an evaluation appointment to work with me, email me at [email protected] for more information!
Our body uses three main systems to know where we are in space and what needs to be done to be balanced and safe. Today’s focus is going to be on our eyes and inner ear working together with visual vestibular integration. Let’s talk about what this is, what happens when visual vestibular integration isn’t working, and what to do about it!
If you need a refresher on our body’s main systems for balance, click here to review our What is Balance article before reading on.
Visual vestibular integration is combining the information from our eyes and inner ear to carry out tasks to help with our balance. These two systems work closely together to help keep our vision steady when moving our body, head, or both at the same time. This is known as the vestibulo-ocular reflex (VOR).
The brain also uses visual and vestibular information to gather as much information about your environment and compares all this information to get as clear a picture as possible. This creates checks and balances to ensure that our brain knows what is going on and can respond correctly.
A good example of this is when you’re sitting in a parked car. The car next to you starts to back up, and you feel like you’re moving briefly. This is your eyes picking up the car backing up next to you and saying “hey we’re moving what are we going to do about it”. You quickly realize that you aren’t moving because your vestibular system kicks in and says “actually we aren’t moving, the eyes are seeing that other car move, we are SAFE”.
If you read the previous article What is Balance, you know there’s the proprioceptive system. We do use our proprioceptive system to compare sensory information with our eyes and inner ear- especially on uneven surfaces and to make sure any body movements are accurate and correct. This relationship is not the main focus of this article but it does exist! We’re focusing on the connection between the inner ear and eyes because of certain symptoms people experience when visual vestibular integration isn’t accurate, so keep reading on to learn more.
If the signal from our vestibular system isn’t sending or perceiving the correct information (BPPV, neuritis, VM etc), our brain starts to ignore what our vestibular system is saying and rely more on our visual system. Using only our eyes can result in busy environments making you feel dizzy or like you are moving when you really aren’t. The vestibular system isn’t being used in these situations to double check the information for our eyes. Things like busy areas like malls or restaurants, action scenes in movies, or first person video games can make your symptoms worse. Luckily, there are ways to work on reducing the reliance on your eyes and start using accurate vestibular information to feel better in busy environments.
Balance exercises that challenge vision help promote your vestibular and proprioceptive systems. With practice and gradual progression of these exercises, our brain starts to relearn how to listen to all 3 senses equally again. Consulting a trained and licensed vestibular therapist can help you safely progress these exercises and is strongly recommended. The goal is to start with sitting or standing balance exercises that make the visual and proprioceptive information hard to gather, so your brain has to rely on vestibular input to complete the exercise! This can be done in a variety of ways,a few ways a trained vestibular PT might accomplish this is:
There are many ways to tailor exercise individually and safely. Consult a professional to evaluate your specific needs and assist you in the safe progression based on your needs!
Want to learn more about visual vestibular integration, and other vestibular tools to get back to your daily life? Found out more at this link: https://tvd.flywheelstaging.com/about-group/
Disclaimer:
Remember: this post is for informational purposes only and may not be the best fit for you and your personal situation. It shall not be construed as medical advice. The information and education provided here is not intended or implied to supplement or replace professional medical treatment, advice, and/or diagnosis. Always check with your own physician or medical professional before trying or implementing any information read here.