I’m so excited to share this win!! I went out into town to go Mother’s Day shopping, which wasn’t exactly easy for me. Walking downtown with busy cars, people walking, and shops. I asked my dad to come with, we chose only one store, and I stayed as calm as possible. In the shop I kept reframing my thoughts and trusting that I was okay while trying to find ways to feel grounded. I was able to find my mom some great gift though! but I definitely felt the exhaustion struggle and dizziness from it.

As soon as I walked out I got a huge quick spin, panicked and wanted to run back to the car, but instead I saw this alley way. I looked at it went huh… stepped aside, and just sat down. My dad sat next to me and I stayed there, grounded myself, breathed, and found my place. I would have never ever been able to do this if it wasn’t for Madison Oak or this group. That’s the first time ever where I didn’t want to run back into the car crying in frustration or freaking out in panic from a situation like this. I actually wanted to stay and learn how to work through it!

I looked around at the cool plants and told my brain it’s okay we got this, did some grounding techniques like ( 5 things I saw, 4 things I heard, 3 things I felt), felt my feet on the ground with my hands on my knees, breathed slowly, let it simply pass, and then made it back to the car and went home feeling so proud! I think that was a huge first step forward in managing the outside world! I definitely want to keep trying and keep learning this. big pat on the back for me.

3 of my kiddos started cross-country this week, and one of my daughters is struggling with it a little, so I told her I’d join her for their practice runs. Yesterday morning, as we were running at the beach (after waking up at 5 a.m), it occurred to me I was running without even giving it a second thought. I was able to run with my daughter because she needed her mama to run with her. I had a flashback to what my life was like a year ago, when I was scared to even attempt exercising because “what if it makes me dizzy”. It was a moment where I just felt so much thankfulness and gratitude for how far I’ve come thanks to this group!

I worked in the office for 9 HOURS yesterday! I’ve been strictly from home since April 22. I started this program late December & have been able to be in office once or twice a week ever since. usually only last about 5 hours so 9 was a big win. My boss hugged me and told me how proud she was several times.

Finally went to church! It has been my top goal, and I have been working on it with my therapist. I went to a Saturday mass with my husband -sat in the narthex which is in the back of the church behind the clear doors. Luckily the church has around 20 seats there for people who may not want to be around other people. I wore my hat and my loop ears. I was able to stand up and sit down during the service. Best part is they bring communion to you so I didn’t have to be self-conscious, walking up to communion, and getting off-balance. So excited and it was so nice to see my husband so happy as well! This group just inspires me! Thank you thank you!

I went to a new friend’s for dinner and didn’t want to share my list of all the foods I can’t have. I decided to try everything Including carrot cake (nuts) and see what happens. I made my mind up I wasn’t going to stress .Woke up with a headache and the usual suspects, took a Sumitriptan and had a great day. I haven’t done this in 5 years.

So 5 years ago almost to the day, I had to stop driving…it was at the same time my son started driving so I gave him my car which he used until it died and he bought his own. (He has been a life saver over these years by the way) Over this past year or so, I’ve slowly started driving locally when I have the opportunity to with my son. Today, I took an uber to the dealership, bought my own car and drove it home by myself, 1/2 hour on a busy 3 lane road! Thank you Madison

We’ve been in the process of moving for the past few weeks. 2 weeks ago today we moved from east Tennessee to coastal NC, and our family of 6 is currently living in a RV. To say things have been a little stressful and exhausting is an understatement!

But my body has been cooperating and handling things much better than I expected it to. I know that all of Vestibular Fit workouts I’ve been doing these past few months has helped condition me so I could get through this really demanding time. I’m so thankful!

I completed the London Marathon today – this time last year I could not walk well because of vertigo- I’ve come along way! Thank you for all the support here – invaluable info and mindset tips

I’m doing really well. I’m almost afraid to say it!! Life is 90% back to normal for me. This week I’ve been working everyday, taking long walks, picking up and dropping off the kids, playing video games, shopping, cooking, cleaning the house. ALL the stuff I could not do 3 months ago. And all thanks to the things I’ve learned here and the wonderful company. The funny thing is my neurologist appt is finally almost here (May 1st). ENT is June 7th. Not sure what I’ll say to them

My sister came to visit and we visited and hiked, then we attended my daughter’s highly immersive and crowded theater performance. It was very loud and intense, but I made it through and really enjoyed it. I sat near a wall and wore earplugs and reminded myself that I was safe when I got symptoms, and they passed. This felt like a huge thing for me because I was literally house bound earlier this year. Connecting with people again is healing.

This week my mom came to visit from out of state while my husband was out of town for work! She took the kids and I out for the day and we ended up at a trampoline park. About half way through, I looked at my mom and was like, “wow, I’m not even that off balance here!” I was shocked. I even was able to jump around a little with my kids. Later that day, I also drove around town a little bit. Something I’ve been pretty much avoiding for a month since I had a bad attack while driving. It was not comfortable, but I pushed through the symptoms and did it! Was so thankful! Mindset is huge for me.

I had a couple big wins this week, my 92 yr old grandma came for a visit and we had a dinner with about 19 family members and I was able to stay for a couple hours without panic and feeling overwhelmed I have been watching the videos on social parties and I would walk outside or take a break and no one even noticed. I have really been struggling with being in a car passenger or driver but I was able to go on a drive to the beach with my husband which we sat in traffic and were stuck on bridges and no symptoms. Anytime we would stop in traffic I would panic. Last I have been getting panic attacks when I drive when I have to stop at a light, so I have been working on driving by myself which I can do daily by myself about 30min in my neighborhood however i can’t cross over a small busy road because there is a stoplight but yesterday the light turned green and I decided that I would just cross over when I did I was so nervous but so excited and proud I turned around and came right back but this was a huge win, I have been watching the videos and they are really helpful also using the tip from Dr.Madison that when your a passenger or driver when stopped press your foot down and repeat I’m still it really does help.

I was hit with Vestibular Neuritis on June 27. It was so difficult for me to get any medical help. I live in a small village with a hospital 20 miles away and only one small clinic for locals. Thankfully for me, my primary care doctor listened to my symptoms and how I had been sick with an upper respiratory infection 2 weeks prior. She suggested VN and sent me home with steroids and an appt to see the ENT 3 days later. I got the confirmation from the ENT that it was VN and was sent home with…nothing and was told to get physical therapy. I was suffering. Badly. There was physical therapy about 30 miles away but they did not treat vestibular issues. I found this group scrolling Instagram one day. Sent a private message, just to see if I could be pointed into the right direction for recovery. Little did I know that this group and these wonderful ladies would be my recovery. I just love the workouts in group fit, the positivity, the understanding, the extra helps and tips. Game changer for me. 3 months ago, I couldn’t function. Now, i still have bad moments, but mostly at 99 percent. I can drive, cook, be a part of my own life again. Take a deep breath, you are in a safe place surrounded by support.

After 5 years, I finally felt confident enough to have my hair dyed and washed in a salon. I was able to lie back in the chair and stay there flat for 5 minutes at the end before it was rinsed! I had been trying to dye it at home but I really needed this. Thanks for all of the support with lying flat.

I drove a golf cart! It’s no motorcycle or atv like I used to drive but it was so fun! Even if I’m having a descent vestibular day my POTS with low BP keeps me from walking as far as I want to on my property, so this opened things up further for me. Bonus: it’s electric so there’s no noise to add to my sensory overload issues.

I would not have even attempted to drive this golf cart if not for the progress I’ve made with Dr. Madison in my VRT appts and the Vestibular Fit program. Thank you!

“In life, we must first learn to crawl, then stand, then walk, then run, and only then, fly. We cannot crawl into flying.”

I haven’t been on my mountain bike in 3 years. And today I got back on it and conquered the dirt, the rocks, roots, and the swooping berms. And a little bit of fear. I can’t tell you how many times in the last year I wanted to give up. How many times I secretly flipped my VRT exercises the middle finger. I have worked on a wobble board, bounced on a trampoline, hopped on little balance balls throughout my living room, done what feels like thousands of vision exercises, and so much more. All to get me to this place today. The reward was as sweet as I anticipated.

It was so hard for me to take small steps. For anyone getting started on this journey… going slow and starting with those small steps pays off. It might seem super frustrating, but you will see immense gains and huge wins. I’ve had some incredibly great days and I have had some gut wrenching setbacks. I’ve cried more tears than a normal person should cry. But, this is proof that the work pays off. In mountain biking you will always hear one phrase. Don’t look down. Only look where you want to go. Seems pretty appropriate for those of us on a vestibular journey.

Keep kicking butt and keep looking where you want to go in this life.

Last week was 1 year since my son was diagnosed with Leukemia. I’ve spent months worrying about it causing me to spiral mentally. I made it through last week and then Monday was hit with the worst migraine flare I’ve ever experienced. It’s lasted all week and been horrible.

BUT. Because of this group I knew a letdown migraine would probably happen. Even in the hardest moments I reminded myself it wouldn’t last forever. That the pain and the dizziness would let up eventually. I’m very slowly finding my way out of the flare. But I can’t imagine what it would have been without the mindfulness I’ve learned in group.

I went swimming in very wavy water this weekend! This was a huge step for me. I felt a bit wonky when I got out, but overall, it was great. I also played a game of badminton with my son. Healing can be a long process, but things really do get better! I’m not out of my chronic VM state yet, but I’m soooo much better than I was before I started the small group coaching in February.

I flew on Thursday from Puerto Rico to San Antonio, rented a car, drove 20 minutes to the hotel at night and yesterday went to a Sweet Sixteen birthday party all by myself I’m using my toolbox as needed. The most interesting thing to me is that yesterday I was waiting all day at the hotel, because the party started at 7pm, and I was looking for things to do, like go to a trampoline park or go to some outdoor activity. I am prone to minor injuries so I stayed, but just because I was alone. Meaning my brain and body are ready for more adventure. To think that last year I struggled to take a shower standing, needed help to go to medical appointments, and other basic stuff is beyond me. Today I’m flying back home and I am proud of myself and glad I trusted the process and did the work, still doing it because I understand it is a lifestyle.

I have been driving A LOT – I’m learning my threshold and was able to set some parameters for driving myself to a 4th of July party 45 minutes away – I couldn’t stay as long as I wanted – but I managed to go on my own, drove the freeway both ways and wasn’t completely out of whack the next day. Learning my capacity for new things is huge for me! I’m also in the middle of a very stressful move lot, but I’m managing! Forced independence. I could not have done this a few months ago! I am so glad I joined this group when I did.

Went kayaking for 2 hrs yesterday! Mindset work has really played a huge part in my recovery this week. Had no idea how much I had thought about feeling dizzy throughout the day, until I watched the critical thinking- video. Now I see that I am able to decrease the feeling of dizziness by telling my brain that the alerts it’s giving me about dizziness are not helpful. What a difference mindset can make!

Made it 2 hours to my new neuro and all day outside afterwards. Had to advocate for my needs a few times, but didn’t feel too awkward about it. I did have to take a med on the drive home the next day – but didn’t beat myself up about it knowing it likely saved me days of recovery. And I was easily able to figure out what advice I wanted to take from him and what felt wrong for me – thanks to the coursework here! Spent a few hours at the pool the next day with LOTS of noise (thank you, loops earplugs) with no uptick of sensations.

After 2 1/2 years of having vm I was finally able to achieve one of my goals. I made it back to Disneyland!! Sounds silly but the week my symptoms started I had gone to Disney for my son’s bday. I couldn’t even make it down Main st . I had to leave and I got really emotional because I couldn’t be there for my son. Now 2 1/2 years later and with my symptoms being much improved, I got enough courage and went. I even went on a few rides! Thanks to this group I knew it was a possibility.

Wins from the last 2 weeks – they have been gloriously exhausting and I made it through everything. From a pedicure & massage, unloading a moving trailer, prepping food, catering, setting up, taking down, and all the in betweens for our daughter’s wedding. Picking up our youngest from college and moving him back home (a 11 hour round trip in 14 hours), and simply regular life in between it all. This is why I am here – to feel like I can live my life as I want & as my family needs. A huge thank you to Drs. Madison & Jenna for their direction in working on the neck exercises – I completed the 6 week “course) two weeks ago and KNOW it has made a world of difference. This community has shown me how to access all the necessary tools to make living with vestibular conditions manageable. When I am at my worst I know where to go for understanding, but even better, where to go for encouragement and help!

Driving to the airport to pick up my son, daughter-in-law and grandbaby. It is a 45 minute drive on the highway and I haven’t done it for over three years! I used to be a flight attendant and flew out of the Cleveland airport for 25 years. So I am super duper excited and proud that I will be doing this today!!! Even the little simple things back in our life again is just magical! I will never take those things for granted again

Such a big win week! I just returned from a week long orientation in DC for my upcoming teaching Fellowship with the U.S. Department of State and it was so wonderful to make so many connections with Fellows going to posts around the world. I overcame the dizzies from the heat, lots of motion with planes/trains/automobiles with my treatment tool kit and managed really well! It gave me more confidence for my 10-month project in Lima, Peru starting in February and also motivated me to focus on some things that I want to improve before we leave. So thankful for this community and all of the tools I continue to learn!

I made it to church last Sunday. I sat with my daughter and her family. The words and lights from the screen were much less blurry and less intense. Hence, Ocular therapy is working. Yay!

I made it through 4 different vestibular assessments this week without triggers! Yay! My limited hours and limited days at work were taxing but did not hinder my progress! I had general end of the week fatigue, but I recovered overnight without additional dizziness, which is minimal this morning! Yay! Thank you, Lord!

Life update 900567….as many here know, I was diagnosed with Neuritis oct 2022…Sept was spent with acute vertigo. I lost 40 lbs puking. I puked 3 to 4 times a day. Oct I still had vertigo, slightly better, only puked once a week…I was a mess, I had to go up 12 stairs to bed or shower, I had to hold on to the railing for dear life, I’d usually puke once I got up them. Cat scan clear, mri clear, Ent diagnosed Neuritis. I started vestibular therapy and had a decent oct and WAS coming along well…decided to try working, doing my reg big Xmas, my girls came home from university and it was just all to much I went backwards.

Already didnt have balance, nystagmus in my eyes, dizzy couldn’t focus, when I went backwards I noticed how awful my anxiety had gotten ( never had this issue) my speech would slur, writing looked like chicken scratch. My vestibular therapist quit Saying she thought I was stuck in flight fight or freeze…l requested another mri to rule out stroke with these issues, it was clear.

From Jan to April I was my own vestibular therapist..

And I found VGF…at this point I was at my Lowest, I’m outgoing, I enjoy talking and people. I decided in January I’m giving this my all….no matter how hard, afraid, I’m doing this….With my hubbies encouragement, I started walking, to the corner and back, then a block and so on…now I walk an hour a day. I went back to work in May pt..I just worked 5 out of 7 days. I started driving around locally. My balance has returned..I hired a new vestibular therapist in April.. she discharged me a few weeks ago…I’m now able to walk my dogs, I went to 3 MLB games, a musical, a vacation. My job requires me to interact and chat with people, sometimes it’s great, other times it’s a struggle. I can go up and down stairs with NO HANDS. For the most part most things have resolved. I still have a foggy, hazy, dizziness that I try to just live my life with. Changed my mindset to I CAN, I will. Stopped being afraid and started to live life and think less….Coming from someone that came from the darkest days….we can do hard things, sending positive vibes and guidance too all warriors!!xo

I cannot thank VGF sooo much! I had one of my biggest wins so far!

One year ago I never would’ve even left the house for more than and hour without freaking out or feeling dizzy. Today, for my husbands 40th bday we went to see Luke Combs at the SoFi Stadium and it was such a big win! It took two hours in stop and go traffic to get there, then we had to navigate through this huge stadium and up and down escalators, all the loud speakers, bright lights and sooo many people!!! I started to get nervous thinking about “what if I get dizzy” but then sat down and started to just ground myself and enjoy the moment and get out of my head! Thank you sooo much!!! I couldn’t have done this without VGF! Here’s a little video! We were so close! ❤️❤️

We did it!

My mom (also a VGF member), Lynn Whipp, and I flew coast to coast and had SUCH an amazing time at my sister’s wedding. We attended multiple family meals and events, and helped a lot with the setup–arranging flowers, decorating 19 tables, and visiting with a LOT of people! We went on walks and hikes near our Airbnb.

I even walked down the aisle to help give away my sister (she wanted the whole family involved) while holding her train. My mom and I both had to take Ubrelvy the wedding day as our symptoms were spiking, but we made it through, and I had a blast dancing (with strobe lights!) with my kids, husband, and a couple of best friends from childhood. I didn’t wear earplugs, which stuns me. My mom danced with my sister!

The day after the wedding, I cooked a meal in a house with 15 family members busily coming into the kitchen. I went in stores, and when our flight was delayed 5 hours, I met a woman in the airport and had great conversation (even though socializing and crowds typically exhaust me).

Did I feel perfect on this trip? No. I got dizzy and queasy on the plane ride out (but meds helped a ton). And when I sat down for the ceremony and overlooked the massive view of the valley below (amazing setting), I got floaty, but I didn’t let myself get anxious. I told myself “I am safe” and I was. And I opted out of an hour drive to the beach the last day because I knew my body was taxed, but that’s ok!

My condition is still there, but I proved to myself I can still live well with VM. No one can take these memories from me. I used every tool I could (even sitting over the airplane wing). I’m so grateful to Madison Oak and Jenna for everything I’ve learned here. I think it was Jenna who had a workout simulating travel moves, and I thought about that while pushing my suitcase. There is NO way my mom and I could have done this without the education and support we got here.

For comparison, I was basically bedridden last December, unable to enter my kitchen or listen to anyone talk. I couldn’t drive, go in a store, hike. While I know I’ll have difficult days again, I also know I can still do hard things, and life can still be good. I hope this gives someone hope today.

Sharing a win – I know it is not Saturday but too good to wait. I joined VGF back in January because I wanted to be at my best for both daughters weddings this summer. First was a week long camp/family get totogether culminating in the wedding on Saturday. I managed numerous large number camp meals, walking across a field, provided an English afternoon tea for the crowd. hiked a steep trail to the beach on the lake etc. On Saturday we had a beautiful outdoor ceremony and a reception under an open walled tent. I handled hot weather, gave a speech and danced!!! Three dances on my feet and then pulled a chair into the dance area and adapted for some more. I am so happy. The day after my husband and I drove out to the west coast of the island and tent camped by the beach (have not done that in years). Early morning in the tent I had horrible vertigo but got through it and a couple of hours later I managed a walk on a very open, windy beach and then 11 hours of passenger travel mostly on gravel logging roads back home. We are both pretty tired today but oh so thrilled. Thank you VGF, I can feel the progress.

Long reflection abt VGF journey ahead…

I joined VGF end of 2022, so basically only started from 2023. have I found my perfect management plan for VM? nope!

I’ve only mainly focused on working on getting out of dizzy-anxious cycle, abit of mindset work and the basics partially (hydration and eating more regularly) while finishing my last year of uni. Attempting to breathe through and chanting “I’m safe. I’m calm. I’m secure/still. this will pass.” are some of my favourite tools I apply v regularly.

I often struggled with guilt and shame about my lack of commitment to lifestyle changes or not having major improvements like many VGF members within a short period. BUT I recognised that I’m actually trying to change 23 years worth of unhealthy lifestyle habits and mental health struggles (poor stress and anxiety management, low self-esteem, family stuff, negative self talk) and existing health issues. So the tiny amount of progress I made and the various tiny unsustained/unsuccessful attempts at making changes or finding what works for me ARE STILL MAJOR WINS.

going into 2024, I’m going to still keep trying to work on myself at my own pace and work on strengthening my commitment to self-improvement. facing so much uncertainty and struggles (being jobless, friendless, etc) while managing VM is SCARY, yet many thriving individuals in VGF prove to me that it’s gonna be OKAY.

I’m glad I found VGF. I think VM and VGF have provided me with an opportunity to improve myself and connect with kind souls. Here’s to thriving in 2024

This is going to sound crazy, because I’m in a huge flare right now, but I’m feeling so very THANKFUL! It was in November of 2020 when all this fun stuff really kicked off for me, and I suffered for so so long before finding Dr. Oak and this group, which literally gave me my life back. I was able to get a proper diagnosis and treatment, and start living a “normal” life again. It’s been over a year since I’ve had a truly bad flare. I woke up two days ago and felt that old familiar feeling, I knew it was here. But the timing was perfect – (if there can be such a thing) my college-aged kids are home on break to snuggle with me on the sofa, and also to hold my hair back when the spinning gets so violent that I’m face down in the toilet, and my husband, who travels much of the time, is in town to care for his live-in mom with Alzheimer’s for whom I’m usually the primary caregiver. But here’s the real reason I’m thankful: because as crappy as I feel, because of this group and the lessons I’ve learned, I know it’ll pass. I know I won’t be like this forever. There was a time when I was terrified that this would always be how I was – bed bound and dependent on others. But I’ve lived it, I’ve experienced it. I know I’ll get better. That HOPE is absolutely essential in healing. And for that I’m eternally grateful.

I know it’s not Wednesday, but wanted to share a small win from today.

I was able to pick up my apartment, do multiple loads of laundry (including putting away- something I usually avoid due to increased dizziness with folding and bending tasks) and made dinner. While this isn’t a lot, it’s a big deal for me to have a productive day off instead of sleeping or laying around. I still had dizziness, but I took my time and reminded myself that I’m ok, I’m safe, and I can do this.

I hope you all are having a good day as well and guidance! thankful for this group and all of your support.

Hi everyone. Just want to share about my weekend. I know we share a lot about our negative experiences and worries most of the time. This time I want to share my win and set back I got right after. I took my daughter to Spokane for volleyball tournament last Friday for 3 days. 2 hours flight with no issues. We arrived and 2 days full of 6 games I watched her and stood by her with no issues. I had only few times high hearth rate and dizziness I’m guessing with excitement of the games. I had my tools with me. I ate on time, protein every meal. Hydrated non stop. Walked to hotel and tournament areas. Did 10k steps each day. I did my meditation and breath work. I was so proud of my self and I felt so so happy to be the mom like old days. And 3rd day, I couldn’t sleep at night and in the morning boom I got huge set back and flare. I took the time to rest stayed at the hotel, and asked help from other moms. I had anxiety on the flight back but I used my essential oils and got it over. We came home and my flare lasted only a day. And im back to my baseline again. This is the first time I didn’t get emotional and depressed with this set back and I think it helped me to get it over quickly. I just wanted to share with you. We do get better, keep doing what you are doing. Do not give up! Yes we do get bad days but good days comes every time after that big hugs everyone who is having a bad day today.

This week I celebrated a personal victory by biking 5 miles and successfully running for a short time also. The sense of empowerment I felt was incredible! I haven’t been able to do this since my issues started in August of 2022!! I am so thankful for this group!

I can’t say how thankful I am for this community and also to the accounts on Instagram a couple of really good positive but also really sharing ambassadors for vestibular migraine and other chronic vestibular diseases.

It feels so strange but really good to hear about the strategies people have for traveling, being in high buildings, being in an open space with a vestibular diseases, go shopping, driving . It’s things that I have done for years but I’ve been told from cbt therapists that these were safety behaviors that I needed to get rid of, otherwise they would just increase my anxiety/ dizziness…. When I tried to do that, my world shrank because I needed them to be able to to things because of my vestibular migraine. So now I have the knowledge that I need these strategies it was never just in my head.

So a big thanks again to this group for educating and understanding, and all of you stand up for yourself deep inside I think we know what’s right for us on this journey.

I made it to my daughter’s really loud conference championship swim meet tonight. So grateful for this group and the mindset work! When I started getting dizzy, I used grounding and breathing, and it passed. I’d missed most of her season, so I’m so thankful for this group to get me back to living even if I don’t feel perfect. I got to see her PR and even visited with a few friends.

I just came back from a trip to Italy! After having the worse VM flare up I have ever had for about 6 weeks prior to going! Had been doing Dr Madison’s plan meditation, hydration, electrolytes, sun, exercises ! Started Nurtec for acute med! Slowly getting back to baseline! Flight went fine both ways! I was so thankful especially for that! First couple of days extremely hot and humid, went on 2 tours to the museums both 4 hours each very crowded lots of stairs did well! One day on a tour of the Tuscany countryside I felt really car sick which I haven’t been like that since I was a kid! Took Nurtec felt so much better ! I even drove one day which is no easy task without having Vm! So anyone that is having a hard time slow and steady wins the race! I hope this helps someone who is having a hard time! Anything is possible !

Huge Win! Yesterday I went to the Broadway production of Les Miserable with my son and his wife. The theater was packed and the city was so busy! I walked along with hundreds of people, watched a three hour performance in the dark with lights and sounds! After we went to a fancy restaurant with water features and low lighting! I sat in the backseat of their car where my view was pretty limited and I DID IT! All with very limited symptoms. I was getting kinda fatigued at the end of the performance but I was able to still enjoy dinner after. I slept very well last night. I had my loop ear plugs, brought sunglasses just in case had meds and also water, I brought some jolly ranchers to throw off any hints of panic that might creep in and I am beyond proud of myself for living and doing something normal!

Having a vestibular disorder makes it really scary to say yes to things sometimes.

We had a lock in last night for our youth group and I said no to helping out because I know how lack of sleep affects my dizziness.

I love these kids like my own, but I was afraid to push myself. I am so thankful their genuine sweetness got the best of me. I had the greatest night ever. Was such a wonderful experience. I had one bad dizzy episode but that is because I was jumping up and down. I let the moment pass. After about 15 minutes I was back having fun.

I learned two great lessons last night. I have to keep saying yes to experiencing life. I may just have to adjust a few things along the way. And jumping up and down just might not be my thing!!

So, whatever you are contemplating this weekend. SAY YES. Experience life. Go have some fun.

If it’s OK, I want to post my win for the week. I haven’t been on too much because I got hit pretty hard with depression after I got through the worst part of my vestibular journey. I never expected it, and it hit like a ton of bricks. Counseling and medication is finally kicking in and I am getting myself back into the light again. Today, I got up, showered, got dressed, got my kids to school, cleaned MY WHOLE HOUSE, went shopping (by myself), and did a workout. These are all daily activities that I took for granted. I fell so hard into depression after beating my vestibular issues, that for weeks I couldn’t muster the energy to do much of anything. My wonderful husband took over most of the load while I was struggling to even have the energy to brush my teeth. I know I still have a long way to go, but today was a good day and I am thankful. It is nice to smile again. Thank you for sticking with me, checking on me, cheering me on.

Today, I am very thankful for this group and Dr. Madison.

My vestibular journey has been rough (as all of ours have) but I have been back and forth with MDDS or VM. I read through Dr. Madison’s module on MDDS and I truly believe I do not have it. While I felt gross after a cruise in 2019 (never again) my “wooziness” is not swaying or rocking, but instead a lightheaded or head in the clouds feeling. I also DO NOT feel better in motion, in fact car rides (even when I drive) or other aspects of motion make me feel terrible. I’m hoping that I’m not alone in this and that I could comfortably believe I have VM and not MDDS.

So today I’m really mad and thankful, weird combo.

Yesterday the fantastic neurahealth posted this on their Instagram “tips on navigating the world with vestibular migraine “. It’s so so good and has the same meaning as this group. To give some background for 10 (!!!!) years I was told that my vertigo and dizziness as with other neurological symptoms where all anxiety and stress and later when pppd came up as a diagnosis that was all I had. These tips and tools that neurahealth shares are actually strategies that I had and found was working for me to keep on with my life. But…. Since I was “just” diagnosed with anxiety I was told that these were just safety behaviors which in cbt needs to be reduced as they are supposed to withhold your anxiety. Thanks to that my world shrunk I was not able to do much.

Now Diagnosed with vm since three years I’m more informed about vm than most of my drs and I know that just as with any other neurological diagnosis you might need medication (not just to treat anxiety that is a symptom of being constant dizzy or have vertigo attacks) and you need tools and strategies to be able to do what you want in life

I’m also thankful for this group and for the info that’s now shared by specialists hoping this will lead to a bigger awareness

Stand up for yourself and don’t let drs tell you it’s all in your head. You’ve got this ❤️❤️

Just wanted to share a win for me. I’ve had one week with vm every other day and today I had an appointment at my hairdresser, to do some coloring and a haircut. This takes about 3 hours and it’s really challenging to me even when I’m not in a flare. So, last night a had an attack again for a couple of hours and I slept horrible. But this morning I was quite ok and I really focused on positive thinking, like this is going to be fine, I’m gonna have a good time and be able to relax while being pampered. And … it worked. I was able to relax in the hairdresser chair, not just holding on to something to keep me upright. Felt so good. I’m not able to work things through and do things under an attack but feels comforting to know I’m able to do this after, still not feeling 100

Just wanted to share a win I had last night. I lay down in bed to go to sleep and felt my heart racing fast and the feeling that my body was on high alert/fight, flight response. In the past I have found it hard to get my body out of this state and relax enough to get to sleep meaning I lie there awake all night or at least a big chunk of the early night time. Since spending time recently educating myself via the premium content I was much more aware of the dizzy anxious cycle and the physiological effect on the body. I used diaphragmatic breathing and mantras that I repeated to myself and I managed to get off to sleep!! It didn’t seem to take long either! I have really struggled with this at times since dizziness starting for me in January. Just knowing what was going on in my body was really empowering and being aware of tools to help it, even better!!

Celebrating a big win! My husband and I went on a cruise and we made it work for us! I wasn’t sure how I would feel but I didn’t let that stop me. We did everything we wanted with slight modifications…..swam in the adult pool instead of the social pool that was mobbed, ate in the dining room when it was less crowded, listened to live music from a distance, napped when I needed to and enjoyed the quiet on the balcony. I brought a cane along just in case and it came in handy. The ship was swaying and so was I but the cane really helped. We enjoyed it so much we are going to do this again.

Huge Win! Yesterday I went to the Broadway production of LesMiserable with my son and his wife. The theater was packed and the city was so busy! I walked along with hundreds of people, watched a three hour performance in the dark with lights and sounds! After we went to a fancy restaurant with water features and low lighting! I sat in the backseat of their car where my view was pretty limited and I DID IT! All with very limited symptoms. I was getting kinda fatigued at the end of the performance but I was able to still enjoy dinner after. I slept very well last night. I had my loop ear plugs, brought sunglasses just in case had meds and also water, I brought some jolly ranchers to throw off any hints of panic that might creep in and I am beyond proud of myself for living and doing something normal!

Sharing a win from today – I took public transportation for the first time since my VM/PPPD diagnosis! I live outside of DC in Virginia, and we have a great metro/bus system, so I don’t have a car. Up until now, I’ve just been going to what’s in walking distance or taking Uber (expensive!).

But today me, my Avulux glasses, and my Loops earplugs made it onto the metro and then into a grocery store to pick up a prescription, followed by a mile+ long walk back to my apartment. This feels like a huge win for my independence and confidence for getting around!

In December, I thought my life was over and was house-bound with 24/7 spinning vertigo. I’m extremely grateful to have made so much progress, and I truly couldn’t have done this without VGF. Dizziness WILL GET BETTER. I promise!

Wednesday win!! I’ve been waiting for an opportunity to give y’all a progress update since my last post a few weeks ago…started new medications (end of Feb / nortriptyline & timolol eye drops), using the GammaCore (mid-Mar), plus really focusing on positive self-talk & grounding more, since joining this group (THANK YOU, Madison & Jenna)…along with daily movement, NO MATTER WHAT…and THIS recently happened! (here’s is a clip from a longer “live” where I explained the story & other things, so I’m giving y’all the important details only) THIS was a pretty monumental vertigo attack for me since I have had vestibular issues since 2000…it was DIFFERENT…WAY different…in a good way!

NOTE: Silly me…I mispronounced my newest rescue med (Clonazapam), but I finally took one dose (I was hesitant, but did…here’s what happened…it is a “cumulative” win, really…all the things worked together…

I trusted the process…I’m a believer FOR SURE, now! I’m no longer scared…I now have confidence in myself AND what I’m doing to be proactive in my vestibular health.

p.s. I started my VRT this week at UT Southwestern…FINALLY!! My therapist is a sweetheart!

I wanted to share a big win. Yesterday was my birthday and in the morning I had a big spin out. I think I was just excited about the day – OK or maybe nervous about turning 63. But, I didn’t let it stop me. I grounded myself for quite some time and did some yoga breathing. I was off most of the day, but still was able to have a wonderful lunch with my parents and husband. We even went to the nursing home to see my aunt who I used to care for before VM. And I even drove home! Yes, I was exhausted when I got home, and went straight to bed. But it was worth every moment! I was listening to a book last night called Calming the Anxious Heart and heard a perfect analogy – two women looking through prison bars, one saw mud, and the other saw stars . I thought that was beautiful! Yesterday was a day of stars! Let’s all try to see more stars in this journey. Have an awesome day!

Sharing an extra special win with people who can understand how truly meaningful it was. This was my one goal this summer.

In Milwaukee, we have an iconic huge bridge that goes over Lake Michigan. This year the bridge was closed for a huge bike ride. Managed 2 loops of the course. Rode 25 miles over the Hoan Bridge with my awesome family and friends.

This would have not been possible without everything I have learned from this group and the V Fit classes. Thankful for all of you and thankful for today!

I’m so excited to share this win!! I went out into town to go Mother’s Day shopping, which wasn’t exactly easy for me. Walking downtown with busy cars, people walking, and shops. I asked my dad to come with, we chose only one store, and I stayed as calm as possible. In the shop I kept reframing my thoughts and trusting that I was okay while trying to find ways to feel grounded. I was able to find my mom some great gift though! but I definitely felt the exhaustion struggle and dizziness from it.

As soon as I walked out I got a huge quick spin, panicked and wanted to run back to the car, but instead I saw this alley way. I looked at it went huh… stepped aside, and just sat down. My dad sat next to me and I stayed there, grounded myself, breathed, and found my place. I would have never ever been able to do this if it wasent for Madison Oak or this group. That’s the first time ever where I didn’t want to run back into the car crying in frustration or freaking out in panic from a situation like this. I actually wanted to stay and learn how to work through it!

I looked around at the cool plants and told my brain it’s okay we got this, did some grounding techniques like (5 things I saw, 4 things I heard, 3 things I felt), felt my feet on the ground with my hands on my knees, breathed slowly, let it simply pass, and then made it back to the car and went home feeling so proud! I think that was a huge first step forward in managing the outside world! I definitely want to keep trying and keep learning this. big pat on the back for me.

Wednesday win: I not only survived a week at one of my family’s favorite places last week (Disney World), but rode almost everything I wanted and had a blast! On our park days, we stayed open to close, walking around 20,000 steps each day. We had this trip planned for a long time before my health struggles, and it felt like a looming insurmountable challenge for so long. I never thought I’d dread a trip to my favorite place, but I did. I was so relieved after our first park day.

After I returned, I was discharged from vestibular therapy because of my progress.

I post this in the hope it will encourage others, not highlight what you can’t do. Months ago, I could barely get off the couch and did not know if life would ever get better. I couldn’t find many success stories out there, so I was anxious and sad. I hope this is inspiring – healing is possible!

Win from the weekend: went on a hike. Got lost. Had to walk the railroad to cut time getting back to the car. I’m afraid of heights and they also make me very dizzy and cause crippling anxiety, so finding myself on this slatted bridge was the stuff of nightmares, but I made it across without falling in.

Yeah, it’s not really that high, but I’m a wuss

This also cut into my getting ready time for a comedy show. So by the time I got home I had an hour to eat, shower, take out and feed my dogs, and make myself presentable after an hours- long traumatic hike.

I did that too. Also sat through a 2.5 hour comedy show without getting dizzy or nauseated. So I’d say it was a pretty big win for someone who couldn’t even make it through a grocery store a few months ago!

I also have a Wednesday win from this last week. Usually i go out w my Hubby for everything driving wise as much as I can. I set a new goal in the new year to grocery shop w him as often as possible. I’ve missed the last few times. But the win this week, was we went to the bottle depot and he said… ok, your turn. So I took the big bags of bottles in and returned them and got the cash back. I know it’s not a big win, but the smells in that place and how dirty and gross and just the task of doing the errand I haven’t done in so long. Trying to make normal tasks my normal as well.

A win for this momma tonight!

I use to flat iron my daughters hair every Sunday evening (her request, I’m all about the curls!) It’s a LONG process & I haven’t been able to do that for her in 10 months! She’s been so understanding & came in my room this evening saying “mom, do you think we could do my hair? if not, that’s okay”

So happy I was able to do this for her, she does so much for me everyday!

Wanted to post some encouragement for others/a personal win.

Friday night I went to a concert. The Red Hot Chili Peppers, so like not a “calm” concert And I did great. I brought earplugs, and averted my eyes when the strobe lights came on. And I did great. Even with the sleep disruption for the night and my lack of great hydration for the day, I felt fine. I was even so excited to be there that I thought, “Even if this causes an reaction to my VM it totally worth”

So for those wondering if you should take a chance, do it!!

I have a win to share!

I had the best time with my people last night

What this picture doesn’t show is that at lunch time, I was experiencing one of my worst episodes yet. I wasn’t even sure I’d be able to go to dinner to celebrate my brother and I’s birthdays. But by the grace of God, I was able to bounce back. Chronic illness is something that I wouldn’t wish upon anyone. Give people grace and enjoy every moment with those you love.

I’d actually had an unbelievably good series of days leading up to this. I did feel my body telling me an attack was coming on and was glad I was able to cope as best as I could. Take the wins when you can get them, and give yourself grace when you’re going through the storm.

So grateful for this network!

I have a win to share:). I’ve been forcing myself to get the mail as often as possible (usually w the dog now too which adds dynamics of fear of other dogs being around. He’s not great w other dogs)

And pushing myself to go around the block w my oldest daughter w the dog when she gets home from work, then they continue on for a longer walk.

This is the big one …. I went for my massage today, praying for no headache later on and she didn’t massage my neck or head this time. But I went in by MYSELF and stayed by myself the whole hour!! I knew my hubby wasn’t in the waiting area that he went to get groceries. I had to implement emdr a few times and tell my body to receive the care being given. Paid for the appt and walked to the car where hubby and our dog were waiting for me:) and after dinner that I half made before my appt (win) just went for another walk w hubby and now time for and Epsom salt bath hydration and relaxing.

Just wanted to share a win today

I have had a rough few months with both my VM and Menieres flaring, combined with lots going on with my four kids. However today I decided to get out of the house and take my 14 month old daughter to watch my 12yo son play in a basketball tournament. I lasted three (mini) games!

I have missed so many of his games over this past year, so I was super proud that I managed to watch him, plus chase after my toddler.

Hi Madison,

Happy Sunday! I just wanted to write to provide some positive feedback of how helpful some of the newer mindset and movement modules have been. Tai Chi is something I had never really considered doing, and Jenna’s videos are a great way for me to connect mind with body in terms of getting used to the strange sensations that tend to come up with this condition and build confidence.

I’m not sure if you take requests or anything, but wanted to see if Jenna has some more advanced Tai Chi workouts that could be shared on VGF?

I also wondered if there is some sort of “in your pocket SOS” mindset module that exists for us to immediately use as a resource during the bad moments? I’ve made a ton of progress in terms of mindset, but I still get really freaked out by my bad days and cannot help myself from spiraling and worrying about how long it will last and my biggest fear – how this will impact my functionality. Some of your other mindset modules where you offer verbal reassurance and validation in movement being safe is super helpful and that it is never just one thing – I’ve leaned on that guidance a lot when starting a new job 2 months ago.

I went from not being able to leave the house alone to go to Walgreens to now living the full commuting life from the suburbs to Chicago every day, walking around the city by myself, and dealing with a toxic boss who really challenges my strength in sticking to my boundaries. So I also wanted to say thank you to you and the team because in those moments that require the most courage I always think of you as motivating support!

Hi! I thought I would introduce myself. I’m Chantal and I live in Ontario, Canada. I’ve recently joined VGF. I can’t believe how much I’ve learned in just over a week and I have so much more to learn! Before I joined, I felt alone, abandoned and defeated. Suddenly, I feel hopeful, energized and empowered! Thank you for providing this one of a kind service!

Hi everyone! I love this group and I have made such great strides by using the information from VGF. I am working outside of my home for the first time in 17 years (stay at home parent) and I am excited! Today was my first day and it went relatively well! I share an office space with 4 other people, as I am only part time, and while right now it is okay, today I got a little dizzy and “brain buzzy” just by sitting in the office, with the lights, and I’m worried about how it’s going to be when multiple people are on the phone as well. Does anyone have any tips or things that I can take to my office space with me to try to help with these symptoms? Also, maybe some other things I can have in a “tool kit”? I’m super excited about this opportunity, but also nervous!

Just giving a shoutout to all the amazing and super helpful and practical content in VGF. I found “Cooking with a vestibular disorder” so helpful this week. Practicing all the head movements with turns, and the forward bends with chin tucks and minding my posture has really helped me feel more comfortable cooking and being in the kitchen again! (and dishes, bending to load/unload dishwasher, looking up into cupboards etc) The VORX1 exercises have been very beneficial for me, I’m noticing improvements daily!

Wins from the last 2 weeks – they have been gloriously exhausting and I made it through everything. From a pedicure & massage, unloading a moving trailer, prepping food, catering, setting up, taking down, and all the in betweens for our daughter’s wedding. Picking up our youngest from college and moving him back home (a 11 hour round trip in 14 hours), and simply regular life in between it all. This is why I am here – to feel like I can live my life as I want & as my family needs. A huge thank you to Drs. Madison & Jenna for their direction in working on the neck exercises – I completed the 6 week “course) two weeks ago and KNOW it has made a world of difference. This community has shown me how to access all the necessary tools to make living with vestibular conditions manageable. When I am at my worst I know where to go for understanding, but even better, where to go for encouragement and help!

Driving to the airport to pick up my son, daughter-in-law and grandbaby. It is a 45 minute drive on the highway and I haven’t done it for over three years! I used to be a flight attendant and flew out of the Cleveland airport for 25 years. So I am super duper excited and proud that I will be doing this today!!! Even the little simple things back in our life again is just magical! I will never take those things for granted again.

Such a big win week! I just returned from a week long orientation in DC for my upcoming teaching Fellowship with the U.S. Department of State and it was so wonderful to make so many connections with Fellows going to posts around the world. I overcame the dizzies from the heat, lots of motion with planes/trains/automobiles with my treatment tool kit and managed really well! It gave me more confidence for my 10-month project in Lima, Peru starting in February and also motivated me to focus on some things that I want to improve before we leave. So thankful for this community and all of the tools I continue to learn!

Today marks one year since I began this journey of dealing with vestibular migraine. I must thank the doctors who created this page because in my darkest and saddest moment, I found hope through this account. I have been in remission for 6 months and can say I am 90% better. I have changed many aspects of my lifestyle thanks to the Madison Oak’s course modules, and the last thing I did was see a specialist in hormonal issues. The result was almost zero levels of progesterone and testosterone, which were contributing to terrible symptoms before my period. Now I feel better and have resumed many activities that I had to put aside, like running, swimming, traveling and working. Thank you for all the guidance and for giving hope to so many people with this condition.

Weekly Win – Went to the Aquarium with my hubby and 6yr old son. It went well! Definitely crowded, hot, and sensory overload – but I did it. Not sure why they decided to make the carpet in a wavy pattern so that, along with the moving water and dark environment took some adjusting to. I definitely held on to the railings and walls and took breathing/grounding breaks on the benches. I didn’t go on the moving sidewalk, people were really packed on there and it was a bit claustrophobic so we just walked through that section. My hat wasn’t really necessary as there wasn’t much overhead lighting, but I did find that carrying the (heavy-ish) backpack helped as it gave me some much needed proprioception, and I was able to walk easier through the shark tunnels, by the huge swaying reef tanks, trippy jellyfish and that darn wavy carpet

I’d say it was a success! We also spent the night at a hotel 2hrs away in downtown Toronto, went to the pool and ate at a busy restaurant. It all took a lot of planning but it was a fun 2 day mini vacation. I made time for some extra rest when we came home as I felt a bit tired the next day. The rest of the week was normal and smooth. This is the first time I’ve been away overnight since September last year.

Welcome to the best group to help you move forward!

“When you spend 1 year expecting a magic pill & VRT alone to cure your VM…just to find out the vertigo doctors methods worked better” I’m not by any means knocking medication & Vestibular therapy! VRT actually helped a lot, however it was not the cure I was promised it would be by multiple doctors! I found the deepest understanding of my condition when I found DR. Madison @thevertigodoctor …this then brought the greatest form of healing for me! Do I still have pppd? YES. Do I feel like it’s slowly going away? ALSO YES!!! I never thought it would go away until learning so much on how to get better from vestibular group fit! I found Dr.Madison in November… it’s only March and I feel like my life is completely different! The mindset shift I’ve experienced from the positivity of this group is unreal, which then lead me to a point where I can barely feel my pppd symptoms…I truly believe I will see dizzy free days just based on a three month progress GO THANK YOU SO MUCH. Dr. Madison has zero involvement in me making this reel, she didn’t ask me to make it and there’s no motives behind it aside from this….I made it because her and her team have been saving my life and I just want anyone who’s struggling with this to potentially find what I found in this group ❤

my first month here and i have learned tons THANK YOU

I started working through the modules! I’m halfway through the basics and feel empowered already. I took my kids to the library and dentist (different days and my husband chauffeured us), and I managed them with only minimal anxiety. I worked out 6 days this week, a mixture of strength and indoor cycling at home. I walked every day. Lots of wins!

One year ago today, my life was literally turned upside down. I was so sick with VM and PPPD last summer that I lost 20lbs due to extreme nausea daily. I also hardly ever slept because I felt like the bed was dropping out from under me every night. Some days I spent 16 hours just sitting in a chair, staring out the window and honestly just wishing I would not wake up the next morning to relive the hell all over again.

I finally started to feel better once I started on Nortriptyline in December and joined this group. The education and support I’ve received has been exactly what I needed and got me to where I am today. I can drive, I can go to grocery stores and run errands, I can take my kids to school and pick them up. I’ve started to have outings with friends again. I can now walk 30 mins most days, which has me feeling a bit like my old self. I feel like I’m slowly improving and getting my life back. Still have work to do to get back to my job as a HIV RN, but I have faith that I will get there.

Thank you Dr Madison and Dr Jenna and to everyone here that has been so amazing. Your support has been vital to my recovery.

Long post: It’s my dizzyversary. One year ago I developed VN after a bad respiratory infection. Knocked me down as it does many people. My anxiety shot through the roof. I felt like I was dying every second of every day. In the beginning, I had to crawl from room to room. I was in a real bad place. Constant ER visits, seeing specialist after specialist. 4 months in, I found these AMAZING ladies. I embraced Vestibular Fit whole heartedly, gave it my all. I did the workouts, listened to all the lives, practiced all the modules. I was getting better day by day. My life was coming back into normal. By 8 months post VN I had developed VM and that put me into a bad place again. I got hit with severe depression. I could barely get out of bed. I was tired of struggling through my life. But Madison and Jenna were there every step of the way. 2 people who wouldn’t let me give up on myself. Now, here I am at my year mark, 100 percent better. And when I say 100 percent, I mean it. Thank you for helping this girl get her life back. I could not have done it without you. your journey has just started, do not give up. These ladies can and will do whatever they can to see you get a balanced life again. Don’t quit. Cheers to dizzy free days.

The day I started group fiat I had been home (bed) bound for 8 months. I cried every damn day and truly believed my life was over. I rapidly lost 50 pounds. I worked 3 jobs and had to leave 2… somehow managed to keep my full time through everything. How do I take care of my daughter like this!? And how the hell does my husband still want me!? were daily questions. I had no answers and had no idea what was going on in my body. I was in a place darker than I ever realized existed.

Now today! I’m on my 7th week of being in the office 3 times a week! I’m driving around my neighborhood. I’ve went into 9 stores in the last 4 weeks. I’m EATING.. and exercising when able. I’ve gained 3 pounds back. My hair isn’t falling out. My husband still wants me & I’m still the best mom in my daughters eyes.

I still have a long journey but my days are getting brighter. Keep pushing!

The pictures below are my average steps for each time frame… I joined late December/early January.

Good evening family. I’m so proud of myself today. I haven’t walked this far in quite a while. I’m so happy to be a part of this group. Thanks for all their inspiring stories that help me push through today.

Hi! I wanted to drop here a the super win of my last week.

I went to the Taylor Swift concert in Madrid, and I really enjoyed it, a year ago it would have been impossible and all because of the mental cycle I was in that because I had pain and symptoms I wasn’t able to do certain things.

Well, changing my mindset has been key, cause yes I can do things having pain and symptoms, and I can enjoy them too!!!!

It was in a different city than mine, so I had to go several hours by train, it was very hot and I had to walk a lot too, I took it very calm, took the medication when I needed it and also used resources such as breathing that I have been practicing so much. Btw, loop earplugs are the best. I am soo happy!!!!

Bit late to answer this but I managed to go on a date! First time since VM/POTS got bad in January. Managed a beach walk and a coffee afterwards and actually enjoyed myself and didn’t really think about dizziness much at all! Had to keep tensing leg muscles when I was sat having a coffee but I did it! Never thought I’d date again.

I have been feeling 💩 lately. We went to the zoo yesterday for my sisters birthday and they

have little rides for the kids. I hyped myself up to go on a ride so my niece could go on with my husband and my son and I felt completely fine after. Maybe I got whiplash but was completely fine after. It was hot and we walked a lot but I tried to stay hydrated and snacked. I know this isn’t the case for every time I get on a rollercoaster, even when small, but I’m glad it didn’t give me anxiety, and I didn’t have to deal with quilt after.

I took a group of 9 year old girls to an escape room yesterday! It was a LOT, but I was super good about light exercise, resting, hydrating before hand… and I’ll admit to paying for all that motion and noise afterwards, but super happy I was able to do it for my daughter’s birthday.

I’ve been feeling good lately but it’s been so stinking hot here in Texas that I haven’t exercised outside in months. Today my college-aged son invited me on a walk and I couldn’t pass up the opportunity to spend that time with him, so I went. About 2 miles in, I had a decent-sized vertigo drop thingy. I guess it was caused by the uneven ground and scenery (we were walking on a wooded trail). It caught me so off guard! It hadn’t happened in so long! But instead of freaking out, I reminded myself that I was safe and that I was stronger than this. I took a few deep breaths and was able to complete our walk together. I was SO proud of myself! This is a DIRECT RESULT of this group! I have learned so much about how to talk myself through these things and how to control my anxiety when things happen. Thank you all for sharing your stories and your support, and thank you Dr Oak, for creating this amazing place.

Woke up this morning, feeling a bit off and decided to take my kiddos to the zoo! The walking was just what I needed to get things a bit more settled. Kids had a great day and I got 8000 steps in. Last year I couldn’t have ever imagined doing this with my kids again. So much can change in a year when you find the right combo of everything and keep on moving. So grateful for all of the support I’ve received here and that I’m starting to do my old life again, just with a few modifications and a little more rest.

Today, I am very thankful for this group and Dr. Madison. My vestibular journey has been rough (as all of ours have) but I have been back and forth with MDDS or VM. I read through Dr. Madison’s module on MDDS and I truly believe I do not have it. While I felt gross after a cruise in 2019 (never again) my “wooziness” is not swaying or rocking, but instead a lightheaded or head in the clouds feeling. I also DO NOT feel better in motion, in fact car rides (even when I drive) or other aspects of motion make me feel terrible. I’m hoping that I’m not alone in this and that I could comfortably believe I have VM and not MDDS.

5 years ago this dizzy journey started with bppv then pppd and finally a vm diagnosis. Those first days just showering or doing really anything was a huge challenge, so much i couldn’t do at all. My independence, all the activities the biking the hiking was all taken away from me suddenly. For years it was a struggle, no diagnosis, no help. Then i found this group. I’ve learnt so much, had the support from Madison, Jenna and the whole team, i walked i exercised i did vrt. Tonight i performed at my new choir’s concert, standing on stage on a higher row, with lights shining on me, being hot, but I didn’t just survive it, but loved it, enjoyed every minute! I would have not believed all those years ago that i would be able to do this again. I prepared though, moved today, ate well, hydrated, rested and relaxed. Tomorrow I’ll rest again. I’ve learnt so much about how to manage and live with vm. I know things can change but I’m so grateful for tonight and for all the support and knowledge! Nobody around me truly understands how huge this is. I think you have to have gone through it to really know. I also just wanted to say to all of you who are at the beginning of your journey, do not give up, sometimes it’s really hard and it’s truly horrible, but there is a way out, there is progression and it will be better. We have got this.

I often think how grateful I am for all of “the wins” that maybe I would have never celebrated without a vestibular disorder. I appreciate this tribe of warriors too, it truly helps to feel seen and heard by others, feeling isolated and alone before was horrible.

I wrote this with a few photos on my profile today…I just can’t express how grateful I am this year for this group, y’all…thanks so much, Madison Oak & Jenna Green, all our movement teachers & all members who support each other!! Today was super easy, despite how I was feeling…I used boxed stuffing & instant mashed…boil water & BAM! Pre-cooked Turkey breast from Costco…sooooo simple…frozen rolls thst csme out AMAZING! Planned for EASY…ended up to be a great decision, since I woke up with pesky ear symptoms…but no freaking out…just stayed calm, did my treatments & carried on, at an even pace. Proud of me…thankful for all of you.

Here’s what I said on my own profile -“Grateful for this yummy Waterloo AND my Vestibular Group Fit program…a support system for my migraine disorder, my dizziness…the best PT’s & members, a positive force in my healing… SO, so glad I found Dr. Madison & Dr. Jenna!!

I sure used all the tips, tricks & tools in my dizziness belt today…muffled hearing, roaring tinnitus & sound sensitivity real, real bad…but I didn’t let it make me doom spiral…I just went at a slower pace. All finished & dishes even done by end of the Cowboys game!

Took a ton of breaks, wore my earplugs, listened to bilateral music. Just another way I am better these days than I was a year ago…I would have been in bed on a day like today…but now I know how to handle things better, what I can do to make things easier, make symptoms manageable…and for that, I’m thankful!!”

I can’t say how thankful I am for this community and also to the accounts on Instagram a couple of really good positive but also really sharing ambassadors for vestibular migraine and other chronic vestibular diseases.

It feels so strange but really good to hear about the strategies people have for traveling, being in high buildings, being in an open space with a vestibular diseases, go shopping, driving . It’s things that I have done for years but I’ve been told from cbt therapists that these were safety behaviors that I needed to get rid of, otherwise they would just increase my anxiety/ dizziness…. When I tried to do that, my world shrank because I needed them to be able to to things because of my vestibular migraine. So now I have the knowledge that I need these strategies it was never just in my head.

So a big thanks again to this group for educating and understanding, and all of you stand up for yourself deep inside I think we know what’s right for us on this journey

Additional info: I have gotten so much from this program and have learned so much.  I can hardly believe I am able to write this e-mail to you! a year and a half ago I could not get on any device, watch TV, drive a car.  Now I can do most things with moderation and Avalux glasses for migraine for all the light issues. And to your friend Alicia Wolf (The Dizzy Cook) for all the food sensitivities and now my survival.  I could not have dreamed that I would be wear I am today.

I hate to cancel my subscription, as I will miss the material and the constant positive input that is so needed by your warriors. ( We get so worn out and tired of being misunderstood and marginalized).  I cannot say thank you enough.

Best reward was a trip to Hawaii visiting my daughter,recently.  I was able to swim, snorkel, hike, sail …..unbelievable!  An impossible dream 5 years ago. Next stop Italy ( with all the tools in my toolbelt you have given and taught me!!) Hugs and kisses to a best friend I have never met and her team.  I am so grateful for you and  ALL your staff of supporters XOXO!!!!!!

I have a Wednesday Win. I DROVE!! For the first time in four years!! Thanks VGFIT!!!!